Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations
Sign Up to like & getrecommendations! Published in 2022 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2022.48696
Abstract: Key Points Question What is known about the frequency, nature, and consequences of care partners’ uptake and use of the patient portal? Findings This scoping review including 41 studies noted that few care partners are… read more here.
Keywords: partner engagement; patient portal; care partners; care ... See more keywords
The Impact of the COVID‐19 Pandemic on Care Partners of People with Parkinson's Disease
Sign Up to like & getrecommendations! Published in 2023 at "Movement Disorders Clinical Practice"
DOI: 10.1002/mdc3.13678
Abstract: Since the onset of the coronavirus disease 2019 pandemic, the caregiving routine for care partners of people with Parkinson's disease (PwPD) changed substantially. read more here.
Keywords: partners people; impact covid; care partners; parkinson disease ... See more keywords
Descubriendo Soluciones Juntos: Cultural Adaptation of Problem-Solving Training for Latinx Care Partners
Sign Up to like & getrecommendations! Published in 2021 at "Archives of Physical Medicine and Rehabilitation"
DOI: 10.1016/j.apmr.2021.07.736
Abstract: Research Objectives To culturally adapt and pilot test the Spanish-language version of Problem-Solving Training (PST) - Descubriendo Soluciones Juntos (DSJ) - for Spanish-speaking Latinx care partners of adults with neurological conditions. PST is an evidence-based… read more here.
Keywords: care partners; soluciones juntos; latinx care; adaptation ... See more keywords
Oropharyngeal Dysphagia in Hospitalized Older Adults With Dementia: A Mixed-Methods Study of Care Partners.
Sign Up to like & getrecommendations! Published in 2022 at "American journal of speech-language pathology"
DOI: 10.1044/2022_ajslp-22-00126
Abstract: PURPOSE Oropharyngeal dysphagia (OD) affects nearly 90% of hospitalized persons with dementia. Yet, little is known about the care partner experience. The purpose of our study was to describe the experience of care partners related… read more here.
Keywords: mixed methods; older adults; care partners; hospitalized older ... See more keywords
Growing Psychosocial Treatment Options for Individuals with Dementia and Their Care Partners
Sign Up to like & getrecommendations! Published in 2022 at "Clinical Gerontologist"
DOI: 10.1080/07317115.2022.2078927
Abstract: In this issue we feature reviews and research focusing on psychosocial treatment approaches for improving the quality of life of individuals living with dementia and their care partners. We begin with a thoughtful ethnographic review… read more here.
Keywords: care partners; living dementia; care; treatment ... See more keywords
The self-management balancing act of spousal care partners in the case of Parkinson’s disease
Sign Up to like & getrecommendations! Published in 2019 at "Disability and Rehabilitation"
DOI: 10.1080/09638288.2017.1413427
Abstract: Abstract Background: Living with and caring for someone with chronic illness can lead to limitations in activity and social participation for the care partner. Past research emphasizes the importance of care partners taking care of… read more here.
Keywords: care partners; spousal care; parkinson disease; care ... See more keywords
Adaptation to poststroke fatigue in stroke survivors and their care partners: a scoping review.
Sign Up to like & getrecommendations! Published in 2022 at "Disability and rehabilitation"
DOI: 10.1080/09638288.2022.2084775
Abstract: PURPOSE Fatigue is a long-term symptom for stroke survivors. This scoping review synthesized how survivors achieve fatigue adaptation. METHODS Four databases were searched for studies between 2012 and 2021. Qualitative studies or qualitative findings from… read more here.
Keywords: adaptation; care partners; survivors care; poststroke fatigue ... See more keywords
#MoreThanAVisitor: Families as “Essential” Care Partners During COVID-19
Sign Up to like & getrecommendations! Published in 2020 at "The Gerontologist"
DOI: 10.1093/geront/gnaa161
Abstract: Abstract The public health response to the current Coronavirus pandemic in long-term care communities, including assisted living, encompasses prohibiting visitors. This ban, which includes family members, has been criticized for being unfair, unhealthy, and unsafe.… read more here.
Keywords: care partners; essential care; families essential; family ... See more keywords
Can Automated Vehicles Be Useful to Persons Living With Dementia? The Perspectives of Care Partners of People Living With Dementia.
Sign Up to like & getrecommendations! Published in 2021 at "The Gerontologist"
DOI: 10.1093/geront/gnab174
Abstract: BACKGROUND AND OBJECTIVES Driving cessation is a complex challenge with significant emotional and health implications for people with dementia, which also affects their family care partners. Automated vehicles (AVs) could potentially be used to delay… read more here.
Keywords: people dementia; use people; living dementia; care partners ... See more keywords
One diagnosis, two perspectives: Lived experiences of persons with young-onset dementia and their care-partners.
Sign Up to like & getrecommendations! Published in 2022 at "The Gerontologist"
DOI: 10.1093/geront/gnac050
Abstract: BACKGROUND AND OBJECTIVES Young-onset dementias (YODs) are a set of progressive illnesses that are stressful for both persons with the diagnosis and their care-partners. Although the stressors differ based on their roles and individual experiences,… read more here.
Keywords: care; diagnosis; young onset; experiences persons ... See more keywords
Addressing the Challenges of Aging: How Elders and Their Care Partners Seek Information
Sign Up to like & getrecommendations! Published in 2017 at "The Gerontologist"
DOI: 10.1093/geront/gnw060
Abstract: Purpose Elders in retirement communities face many challenges concerning information and communication. We know little about whether or how online technologies help meet their medical and social needs. The objective of this study was to… read more here.
Keywords: care partners; information; challenges aging; elders care ... See more keywords