The demands of caregivers of children with acute lymphoblastic leukaemia in different therapy stages and the exploration of possible interventions: A longitudinal investigation survey at a Tertiary Medical Institution
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DOI: 10.1002/nop2.1481
Abstract: To describe the demands of family caregivers of children with ALL at different therapy stages and explore the possible interventions to address their care demands. read more here.
Keywords: different therapy; therapy stages; demands caregivers; caregivers children ... See more keywords
“New Trach Mom Here…”: A qualitative study of internet‐based resources by caregivers of children with tracheostomy
Sign Up to like & getrecommendations! Published in 2021 at "Pediatric Pulmonology"
DOI: 10.1002/ppul.25355
Abstract: Decision‐making around tracheostomy placement and chronic respiratory support in children is complicated. Families often seek support and advice from outside the medical care team, including from social media. We undertook this study to characterize the… read more here.
Keywords: new trach; caregivers children; study; mom qualitative ... See more keywords
Depression, anxiety, and sleep quality of caregivers of children with spinal muscular atrophy
Sign Up to like & getrecommendations! Published in 2022 at "Pediatric Pulmonology"
DOI: 10.1002/ppul.26379
Abstract: The aim of this study was to evaluate the prevalence of anxiety, depression, sleep, and associated factors in caregivers of children with spinal muscular atrophy (SMA). read more here.
Keywords: spinal muscular; depression; muscular atrophy; children spinal ... See more keywords
Assessment of the Concerns of Caregivers of Children with Repaired Esophageal Atresia–Tracheoesophageal Fistula Related to Feeding–Swallowing Difficulties
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DOI: 10.1007/s00455-019-10046-5
Abstract: The study aimed to assess concerns of caregivers of children with EA-TEF related to feeding–swallowing difficulties, compare the concerns according to type of atresia and repair time, and investigate its relationship with time to start… read more here.
Keywords: swallowing difficulties; feeding swallowing; caregivers children; time ... See more keywords
Early-Literacy Intervention Conducted by Caregivers of Children with Language Impairment: Implementation Patterns Using Survival Analysis
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DOI: 10.1007/s10803-019-03925-1
Abstract: This study examined implementation of an evidence-based home reading program by caregivers of children with language impairment. Caregivers received materials and supports to read with their children for 15 weeks, four times weekly; in total,… read more here.
Keywords: language impairment; children language; caregivers children; implementation ... See more keywords
Brief Report: Identifying Concerns of Military Caregivers with Children Diagnosed with ASD Following a Military Directed Relocation.
Sign Up to like & getrecommendations! Published in 2021 at "Journal of autism and developmental disorders"
DOI: 10.1007/s10803-021-04936-7
Abstract: Military families relocate three times more often than non-military families. Those whom have children diagnosed with Autism Spectrum Disorder face challenges related to inconsistencies in services, delay of services, and lack of continuity of care.… read more here.
Keywords: children diagnosed; caregivers children; autism; military caregivers ... See more keywords
Parental Stress in Primary Caregivers of Children with Evidence of Congenital Zika Virus Infection in Northeastern Brazil
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DOI: 10.1007/s10995-020-03053-8
Abstract: Despite the well-known role of parents as caregivers, few studies have addressed their health outcomes related to the Zika virus epidemic. A cross-sectional study was carried out with 146 primary caregivers of children 15–26 months… read more here.
Keywords: caregivers children; infection; evidence; stress ... See more keywords
Caregivers of Children with Fetal Alcohol Spectrum Disorder: Psychosocial Factors and Evidence for Self-compassion as a Potential Intervention Target
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DOI: 10.1007/s12671-020-01443-1
Abstract: Objectives Fetal alcohol spectrum disorder (FASD) is a common neurodevelopmental condition involving lifelong challenges for both children and their families. The aim of the current study was to explore experiences of caregivers of children, adolescents… read more here.
Keywords: caregiver psychological; caregivers children; compassion; self compassion ... See more keywords
Caregiver Burden in Primary Congenital Glaucoma.
Sign Up to like & getrecommendations! Published in 2019 at "American journal of ophthalmology"
DOI: 10.1016/j.ajo.2019.05.003
Abstract: PURPOSE To evaluate the demographic, clinical, and socioeconomic factors associated with quality of life (QOL) in caregivers of children with primary congenital glaucoma (PCG) in south India. DESIGN Cross-sectional survey. METHODS Caregivers of children under… read more here.
Keywords: caregivers children; age; caregiver; congenital glaucoma ... See more keywords
Modifiable personal and environmental factors associated with anxiety in family caregivers of children with disabilities: A comparison between parents and grandparents.
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DOI: 10.1016/j.jad.2021.08.101
Abstract: BACKGROUND Caregivers of children with disabilities might face high risk of anxiety, but the specific influencing factors may be different between parents and grandparents. This study is to explore the influencing modifiable factors from personal… read more here.
Keywords: risk anxiety; personal environmental; caregivers children; anxiety ... See more keywords
Self-care in caregivers of children with FASD: How do caregivers care for themselves, and what are the benefits and obstacles for doing so?
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DOI: 10.1016/j.ridd.2020.103578
Abstract: BACKGROUND Caregivers of children with fetal alcohol spectrum disorders (FASD) have elevated levels of stress, which can negatively impact family functioning and caregivers' mental and physical health. Self-care is a critical resource to address caregivers'… read more here.
Keywords: children fasd; caregivers children; confidence; family ... See more keywords