Caregivers of Individuals with Rubinstein-Taybi syndrome: Perspectives, experiences, and relationships with medical professionals.
Sign Up to like & getrecommendations! Published in 2021 at "Journal of genetic counseling"
DOI: 10.1002/jgc4.1464
Abstract: Rubinstein-Taybi syndrome (RTS) is a rare genetic disorder. Family-centered care (FCC) is a healthcare delivery approach that aims to create an equal partnership between caregivers and providers. FCC has been shown to improve parental wellbeing,… read more here.
Keywords: individuals rts; caregivers individuals; rubinstein taybi; care ... See more keywords
Help-Seeking by Parental Caregivers of Individuals with Intellectual Disabilities and Dual Diagnosis
Sign Up to like & getrecommendations! Published in 2018 at "Administration and Policy in Mental Health and Mental Health Services Research"
DOI: 10.1007/s10488-018-00915-w
Abstract: This study examined the roles of stigma and of enabling factors in help-seeking by parental caregivers of individuals with intellectual disabilities and dual diagnosis. Questionnaires were completed by 195 family caregivers. Lower family stigma was… read more here.
Keywords: individuals intellectual; help seeking; parental caregivers; caregivers individuals ... See more keywords
The physical and psychological wellbeing of caregivers of individuals suffering from substance addiction.
Sign Up to like & getrecommendations! Published in 2020 at "Archives of psychiatric nursing"
DOI: 10.1016/j.apnu.2020.03.007
Abstract: OBJECTIVE This paper seeks to examine the physical and psychological wellbeing of caregivers of individuals suffering from substance addiction. METHOD To obtain knowledge of the needs of caregivers of substance addicted individuals and investigating their… read more here.
Keywords: substance; suffering substance; caregivers individuals; substance addiction ... See more keywords
Development of the life change adaptation scale for family caregivers of individuals with acquired brain injury
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DOI: 10.1371/journal.pone.0241386
Abstract: Aim Life changes due to the sudden onset of acquired brain injury (ABI) are drastic personal and social changes that require adaptation and are also an important indicator of the quality of life of family… read more here.
Keywords: acquired brain; caregivers individuals; family; family caregivers ... See more keywords
Experiencing illness as a crisis by the caregivers of individuals with Prader-Willi Syndrome
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DOI: 10.1371/journal.pone.0273295
Abstract: BACKGROUND The behavioural phenotype of Prader-Willi Syndrome (PWS) implies a specific emotional and social-interactive burden for the caregivers of the individuals with PWS. The aim of the study was to perform an in-depth exploratory analysis… read more here.
Keywords: crisis; caregivers individuals; prader willi; individuals pws ... See more keywords
Predictors of caregiver burden in caregivers of individuals with traumatic or non-traumatic brain injury: A scoping review.
Sign Up to like & getrecommendations! Published in 2023 at "NeuroRehabilitation"
DOI: 10.3233/nre-220134
Abstract: BACKGROUND Caregivers of individuals with traumatic (TBI) or non-traumatic brain injury (nTBI) are at risk of significant caregiver burden. Consequently, it is crucial to examine predictors of caregiver burden to enable early identification and intervention.… read more here.
Keywords: traumatic brain; predictors caregiver; caregivers individuals; brain ... See more keywords
Existing But Not Living: Experiences of Long-Term Caregivers of Individuals With Unipolar Depression.
Sign Up to like & getrecommendations! Published in 2017 at "Journal of psychosocial nursing and mental health services"
DOI: 10.3928/02793695-20170818-06
Abstract: The shift in care from long-term hospitalization of individuals with mental illness to the community places a greater onus of responsibility on informal caregivers. The purpose of the current study was to explore the lived… read more here.
Keywords: experiences long; term; long term; caregivers individuals ... See more keywords
Determinants of Burden in Family Caregivers of Individuals With Schizophrenia: A Systematic Review.
Sign Up to like & getrecommendations! Published in 2022 at "Journal of psychosocial nursing and mental health services"
DOI: 10.3928/02793695-20220804-02
Abstract: The current systematic review was performed to determine the specific burdens placed on families of individuals with schizophrenia. Scopus, PubMed, and CINAHL databases were searched, resulting in 21 articles that met inclusion criteria. Results showed… read more here.
Keywords: family; individuals schizophrenia; caregivers individuals; systematic review ... See more keywords