A Pilot, Multicentre Pragmatic Randomised Trial to Explore the Impact of Carer Skills Training on Carer and Patient Behaviours: Testing the Cognitive Interpersonal Model in Adolescent Anorexia Nervosa
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DOI: 10.1002/erv.2540
Abstract: AIM The aim of the study is to establish the acceptability, feasibility and approximate size of the effect of adding a carer intervention [Experienced Caregivers Helping Others (ECHO)] to treatment as usual (TAU) for adolescents… read more here.
Keywords: adolescent anorexia; anorexia nervosa; carer; randomised trial ... See more keywords
A systematic review of the provision and efficacy of patient and carer information and support (PCIS) interventions for patients with dementia and their informal carers
Sign Up to like & getrecommendations! Published in 2019 at "Aging Clinical and Experimental Research"
DOI: 10.1007/s40520-019-01428-8
Abstract: The NHS dementia strategy identifies patient and carer information and support (PCIS) as a core component of gold-standard dementia care. This is the first systematic review of PCIS, performed to analyse the literature and evidence… read more here.
Keywords: pcis; dementia informal; information; informal carers ... See more keywords
Apathy and its impact on carer burden and psychological wellbeing in primary progressive aphasia
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DOI: 10.1016/j.jns.2020.117007
Abstract: OBJECTIVE While patients with primary progressive aphasia (PPA) typically present with predominant language impairment, behavioural symptoms, such as apathy, are often under-recognised. We aimed to systematically characterise apathy across the three recognised subtypes of PPA,… read more here.
Keywords: progressive aphasia; carer burden; carer; burden psychological ... See more keywords
Predictors and moderators of burden of care and emotional distress in first-episode psychosis caregivers: results from the GET UP pragmatic cluster randomised controlled trial
Sign Up to like & getrecommendations! Published in 2020 at "Epidemiology and Psychiatric Sciences"
DOI: 10.1017/s2045796019000155
Abstract: Abstract Aims First-episode psychosis (FEP) is a major life event and can have an adverse impact on the diagnosed individual and their families. The importance of intervening early and providing optimal treatments is widely acknowledged.… read more here.
Keywords: first episode; emotional distress; treatment; carer ... See more keywords
“They Didn’t Even Let Me Say Goodbye”: A Study of Imprisoned Primary Carer Fathers’ Care Planning for Children at the Point of Arrest in Victoria, Australia
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DOI: 10.1080/13575279.2017.1420035
Abstract: ABSTRACT In Victoria, data indicates that in 2013–2014 there were 74,992 adult male arrests, yet little formal attention has been paid to the parenting status of these men, despite knowledge of the impact of parental… read more here.
Keywords: carer fathers; victoria; primary carer; study ... See more keywords
Challenges implementing a carer support intervention within a national stroke organisation: findings from the process evaluation of the OSCARSS trial
Sign Up to like & getrecommendations! Published in 2021 at "BMJ Open"
DOI: 10.1136/bmjopen-2020-038129
Abstract: Objectives To examine the implementation of an intervention to support informal caregivers and to help understand findings from the Organising Support for Carers of Stroke Survivors (OSCARSS) cluster randomised controlled trial (cRCT). Design Longitudinal process… read more here.
Keywords: intervention; staff; trial; implementation ... See more keywords
Suitability and acceptability of the Carer Support Needs Assessment Tool (CSNAT) for the assessment of carers of people with MND: a qualitative study
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DOI: 10.1136/bmjopen-2020-039031
Abstract: Objectives Motor neurone disease (MND) is a progressive, life-limiting illness. Caregiving impacts greatly on family carers with few supportive interventions for carers. We report Stages 1 and 2 of a study to: (1) explore experiences… read more here.
Keywords: support needs; tool; support; carer ... See more keywords
Living beyond expectations: a qualitative study into the experience of long-term survivors with pleural mesothelioma and their carers
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DOI: 10.1136/bmjresp-2022-001252
Abstract: Background Malignant pleural mesothelioma (MPM) is characterised by poor prognosis and limited treatment options. However, a minority of patients can survive well beyond these bleak estimates. Little is known about the specific experiences and needs… read more here.
Keywords: long term; term survivors; pleural mesothelioma; mesothelioma ... See more keywords
A Systematic Review and Meta-Analysis Comparing Carer Focused and Dyadic Multicomponent Interventions for Carers of People With Dementia
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DOI: 10.1177/0898264316660414
Abstract: Objective: The aim of this study was to compare the efficacy of two approaches: multicomponent interventions that focus on working with the carer and dyadic interventions that work with both the carer and the person… read more here.
Keywords: people dementia; carers people; systematic review; carer ... See more keywords
Respite in Dementia: An Evolutionary Concept Analysis
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DOI: 10.1177/1471301217715325
Abstract: Aim There is a lack of conceptual clarity around ‘respite’ as it relates to people with dementia and their carers. This study provides clarification on the use and meaning of the term and considers the… read more here.
Keywords: respite dementia; search; dementia; carer ... See more keywords
Covid-19 and the quality of life of people with dementia and their carers—The TFD-C19 study
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DOI: 10.1371/journal.pone.0262475
Abstract: Introduction COVID-19 has placed unprecedented pressure on dementia health and social care systems worldwide. This has resulted in reduced services and support for people with dementia and their family carers. There are gaps in the… read more here.
Keywords: family; person dementia; people dementia; carer ... See more keywords