Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework
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DOI: 10.1002/gps.4990
Abstract: Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the… read more here.
Keywords: people dementia; carers people; family carers; conceptual framework ... See more keywords
Impact of COVID‐19 on carers of people with dementia in the community: Findings from the British IDEAL cohort
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DOI: 10.1002/gps.5708
Abstract: Unpaid carers for people with dementia play a crucial role in society. Emerging evidence suggests the COVID‐19 pandemic has negatively impacted on carers. This study sought to explore the impact of the COVID‐19 pandemic on… read more here.
Keywords: impact covid; covid carers; community; people dementia ... See more keywords
Measuring the quality of life of family carers of people with dementia: development and validation of C-DEMQOL
Sign Up to like & getrecommendations! Published in 2019 at "Quality of Life Research"
DOI: 10.1007/s11136-019-02186-w
Abstract: PurposeWe aimed to address gaps identified in the evidence base and instruments available to measure the quality of life (QOL) of family carers of people with dementia, and develop a new brief, reliable, condition-specific instrument.MethodsWe… read more here.
Keywords: carers people; family; family carers; quality life ... See more keywords
A validation study of the ICECAP-O in informal carers of people with dementia from eight European Countries
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DOI: 10.1007/s11136-019-02317-3
Abstract: Purpose The pressure on healthcare budgets remains high, partially due to the ageing population. Economic evaluation can be a helpful tool to inform resource allocation in publicly financed systems. Such evaluations frequently use health-related outcome… read more here.
Keywords: people dementia; eight european; carers people; informal carers ... See more keywords
eHealth interventions for family carers of people with long term illness: A promising approach?
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DOI: 10.1016/j.cpr.2018.01.008
Abstract: Family carers of people who have long term illness often experience physical and mental health morbidities, and burden. While there is good evidence to suggest that carers benefit from psychosocial interventions, these have primarily been… read more here.
Keywords: term illness; long term; carers people; ehealth interventions ... See more keywords
Social exclusion in adult informal carers: A systematic narrative review of the experiences of informal carers of people with dementia and mental illness.
Sign Up to like & getrecommendations! Published in 2018 at "Maturitas"
DOI: 10.1016/j.maturitas.2018.03.011
Abstract: Social exclusion has a negative impact on quality of life. People living with dementia or mental health disorders as well as informal carers have been separately described as socially excluded. The objective of this systematic… read more here.
Keywords: social exclusion; adult; carers people; exclusion ... See more keywords
An analysis of carer burden among family carers of people with and without dementia in Ireland
Sign Up to like & getrecommendations! Published in 2020 at "International Psychogeriatrics"
DOI: 10.1017/s1041610220000769
Abstract: ABSTRACT Objective: Despite the policy relevance of carer burden, limited research focuses on family carers’ experience of carer burden among different disease groups. This study aimed to examine differences in carer burden among family carers… read more here.
Keywords: burden; carer burden; carers people; family carers ... See more keywords
A mixed methods evaluation of a program exploring predeath grief and loss for carers of people with rarer dementias.
Sign Up to like & getrecommendations! Published in 2023 at "International psychogeriatrics"
DOI: 10.1017/s1041610223000236
Abstract: OBJECTIVES Predeath grief conceptualizes complex feelings of loss experienced for someone who is still living and is linked to poor emotional well-being. The Road Less Travelled program aimed to help carers of people with rarer… read more here.
Keywords: rarer dementias; people rarer; loss; program ... See more keywords
Availability and evaluation of medication management resources for carers of people with dementia: a scoping review with an environmental scan
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DOI: 10.1080/17512433.2023.2181158
Abstract: ABSTRACT Introduction There is a need for resources to guide informal carers in medication management for people with dementia. Availability of resources on medication management guidance has yet to be explored. Areas covered A systematic… read more here.
Keywords: resources carers; management; people dementia; medication management ... See more keywords
073Anticipatory Grief in Carers of People with Parkinson’s Disease
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DOI: 10.1093/ageing/afx144.99
Abstract: Background: In advanced disease, people with Parkinson’s disease (PD) experience many disabling symptoms such as inability to perform activities of daily living, reduced speech/interaction, hallucinations, and poor sleeping, which in addition to the effects on… read more here.
Keywords: depression; carers people; people parkinson; anticipatory grief ... See more keywords
A Systematic Review and Meta-Analysis Comparing Carer Focused and Dyadic Multicomponent Interventions for Carers of People With Dementia
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DOI: 10.1177/0898264316660414
Abstract: Objective: The aim of this study was to compare the efficacy of two approaches: multicomponent interventions that focus on working with the carer and dyadic interventions that work with both the carer and the person… read more here.
Keywords: people dementia; carers people; systematic review; carer ... See more keywords