Enabling and caring for children with limb loss
Sign Up to like & getrecommendations! Published in 2021 at "Paediatrics and Child Health"
DOI: 10.1016/j.paed.2021.06.003
Abstract: Abstract The loss of a limb places a significant physical and emotional burden on the child and their family. Limb loss in children can be congenital or acquired due to trauma or disease and its… read more here.
Keywords: caring children; loss; limb loss; enabling caring ... See more keywords
Corrigendum to "Caring for children with intellectual disabilities part 1: Experience with the population, pain-related beliefs, and care decisions" [Res. Dev. Disabil. 62 (2017) 197-208].
Sign Up to like & getrecommendations! Published in 2017 at "Research in developmental disabilities"
DOI: 10.1016/j.ridd.2017.03.013
Abstract: The authors would like to clarify that beyond being submitted concurrently, “part two” of this manuscript has been published in Research in Developmental Disabilities. The relevant citation for part two of this manuscript is: Genik,… read more here.
Keywords: part; care decisions; caring children; intellectual disabilities ... See more keywords
Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders
Sign Up to like & getrecommendations! Published in 2020 at "International Journal of Qualitative Studies on Health and Well-being"
DOI: 10.1080/17482631.2020.1725362
Abstract: ABSTRACT Purpose: The experiences of parents caring for the complex care needs of children with rare neurodevelopmental disorders are not well understood. Parents struggle to meet their children’s medical, behavioural, and social needs within and… read more here.
Keywords: rare neurodevelopmental; children rare; parents experience; caring children ... See more keywords
Caring for Children in Relation to Financial Hardship, Advance Care Planning, and Genetic Testing Among Adolescent and Young Adults with Cancer.
Sign Up to like & getrecommendations! Published in 2023 at "Journal of adolescent and young adult oncology"
DOI: 10.1089/jayao.2023.0010
Abstract: Purpose: When a cancer diagnosis coincides with caring for children, it may influence the financial impacts of cancer and decisions to pursue advance care planning (ACP) or genetic testing. We examined associations between caring for… read more here.
Keywords: adolescent young; genetic testing; financial hardship; caring children ... See more keywords
‘We have been in lockdown since he was born’: a mixed methods exploration of the experiences of families caring for children with intellectual disability during the COVID-19 pandemic in the UK
Sign Up to like & getrecommendations! Published in 2021 at "BMJ Open"
DOI: 10.1136/bmjopen-2021-049386
Abstract: Objectives This study aimed to explore the experiences of parents caring for children with intellectual and developmental disabilities (IDD) during the UK national lockdown in spring 2020, resulting from the COVID-19 pandemic. Design Participants were… read more here.
Keywords: since born; caring children; born mixed; lockdown since ... See more keywords
Conceptualising paediatric advance care planning: a qualitative phenomenological study of paediatricians caring for children with life-limiting conditions in Australia
Sign Up to like & getrecommendations! Published in 2022 at "BMJ Open"
DOI: 10.1136/bmjopen-2021-060077
Abstract: Objectives Advance care planning (ACP) helps families and paediatricians prepare and plan for end-of-life decision-making. However, there remains inconsistency in its practice with the limited literature describing what this preparation involves, and whether paediatricians recognise… read more here.
Keywords: advance care; care planning; life; care ... See more keywords
The Impact of Caring for Children With Severe Neurological Impairment on Clinicians
Sign Up to like & getrecommendations! Published in 2022 at "Clinical Pediatrics"
DOI: 10.1177/00099228221099135
Abstract: Clinicians face many challenges in caring for children with severe neurological impairment (SNI). This study aimed to understand expert clinician perspectives on the personal impact of caring for children with SNI to highlight the challenges… read more here.
Keywords: severe neurological; children severe; caring children; neurological impairment ... See more keywords
The psychosocial and economic impacts on female caregivers and families caring for children with a disability in Belu District, Indonesia
Sign Up to like & getrecommendations! Published in 2020 at "PLoS ONE"
DOI: 10.1371/journal.pone.0240921
Abstract: The current study aimed to understand psychosocial and economic impacts of female caregivers and families caring for children with a disability in Belu district, Indonesia. A qualitative inquiry employing one-on-one in-depth interviews was used to… read more here.
Keywords: children disability; caring children; disability; economic impacts ... See more keywords
Caregiver distress: A mixed methods evaluation of the mental health burden of caring for children with bladder exstrophy
Sign Up to like & getrecommendations! Published in 2022 at "Frontiers in Pediatrics"
DOI: 10.3389/fped.2022.948490
Abstract: Introduction Caring for children with bladder exstrophy-epispadias complex (BEEC) exacts a long-term emotional toll on caregivers. Previous studies leave a gap in understanding the impact that caring for a child with BEEC has on caregivers… read more here.
Keywords: caring children; caregiver distress; bladder exstrophy;
A Qualitative Study Exploring the Experiences of Mothers Caring for Their Children with Thalassemia in Iran
Sign Up to like & getrecommendations! Published in 2021 at "Ethiopian Journal of Health Sciences"
DOI: 10.4314/ejhs.v31i6.25
Abstract: Background Mothers of children with thalassemia usually experience many sufferings and challenges in caring of their children. The present study aimed to explore the experiences of mothers caring for their children with thalassemia. Methods In… read more here.
Keywords: qualitative study; caring children; experiences mothers; mothers caring ... See more keywords