Caring for a child with Bardet-Biedl syndrome: A qualitative study of the parental experiences of daily coping and support.
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DOI: 10.1016/j.ejmg.2020.103856
Abstract: This study aimed to explore the parental experiences of having a child with Bardet-Biedl syndrome (BBS) and how parents managed to cope with this situation. Five parents of children with BBS (0-18 years old) participated… read more here.
Keywords: bardet biedl; study; biedl syndrome; child bardet ... See more keywords