Assessment of Factors Associated With Parental Perceptions of Voluntary Decisions About Child Participation in Leukemia Clinical Trials
Sign Up to like & getrecommendations! Published in 2021 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2021.9038
Abstract: Key Points Question Are health literacy, contextual factors, or sociodemographic characteristics associated with parental perception of voluntariness during informed consent for pediatric leukemia clinical trials? Findings In this cross-sectional study that included 97 parents of… read more here.
Keywords: child participation; clinical trials; leukemia clinical; decisions child ... See more keywords
Child participation in child welfare removals through the looking glass: Estonian children’s and professionals’ perspectives compared
Sign Up to like & getrecommendations! Published in 2020 at "Children and Youth Services Review"
DOI: 10.1016/j.childyouth.2020.105421
Abstract: Abstract Participation is one of the basic rights of the child, which includes participation in juridical decision-making processes that affect the life of the child; however, considering the complexity of judicial proceedings such as child… read more here.
Keywords: participation; child welfare; child; child participation ... See more keywords
Children’s participation in Dutch youth care practice: an exploratory study into the opportunities for child participation in youth care from professionals’ perspective
Sign Up to like & getrecommendations! Published in 2018 at "Child Care in Practice"
DOI: 10.1080/13575279.2018.1521382
Abstract: ABSTRACT Since 2015, local municipalities in the Netherlands have been responsible for the organisation of the youth care and child protection system. One of the basic assumptions underlying the new Youth Act (2015) is the… read more here.
Keywords: youth; youth care; practice; care ... See more keywords
Parental Experiences of Child Participation in a Phase I Pediatric Oncology Clinical Trial: “We Don’t Have Time to Waste”
Sign Up to like & getrecommendations! Published in 2019 at "Qualitative Health Research"
DOI: 10.1177/1049732318766513
Abstract: Children with cancer are only eligible for phase I clinical trials (P1Ts) when no known curative therapy remains. However, the primary aims of P1Ts are not focused on directly benefiting participants. This raises ethical concerns… read more here.
Keywords: participation; pediatric oncology; experiences child; time ... See more keywords
Exploring the mechanism through which a child-friendly storybook addresses barriers to child-participation during HIV care in primary healthcare settings in KwaZulu-Natal, South Africa
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DOI: 10.1186/s12889-021-10483-8
Abstract: Background Healthcare workers (HCWs) in South Africa widely use job-aids as practical tools to enhance the provision of HIV services, thereby improving patient-provider interactions during the care process. Job-aids are visual support materials that provide… read more here.
Keywords: south africa; hiv; child; care ... See more keywords