Psychosocial care for children with haemophilia and their parents in the Netherlands
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DOI: 10.1111/hae.13186
Abstract: Children growing up with haemophilia are at greater risk for psychosocial problems than their healthy peers. Providing psychosocial care to children with haemophilia and their families is indispensable, since psychosocial factors can have a significant… read more here.
Keywords: children haemophilia; psychosocial care; haemophilia parents; parents netherlands ... See more keywords
Perioperative haemostasis in children with haemophilia and inhibitors during central venous catheter surgery: The Karolinska model
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DOI: 10.1111/hae.13594
Abstract: national tender process with higher prices per unit for standard FVIII and FIX concentrates, the absence of difference in price per unit for standard FVIII and EHLFVIII concentrates, the only recent introduction of a network… read more here.
Keywords: children haemophilia; inhibitors central; haemophilia inhibitors; haemostasis children ... See more keywords
Prophylaxis in children with haemophilia in an evolving treatment landscape
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DOI: 10.1111/hae.14412
Abstract: For children with haemophilia, early initiation of prophylaxis is crucial to prevent life‐threatening bleeds and maintain joint health throughout life. Options for prophylaxis have recently increased from replacement therapy with standard or extended half‐life coagulation… read more here.
Keywords: children haemophilia; treatment landscape; prophylaxis; haemophilia evolving ... See more keywords
Screening for inattention, hyperactivity and impulsivity in children with haemophilia: A quality improvement intervention
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DOI: 10.1111/hae.14656
Abstract: Children with haemophilia have been reported with increased rates of inattention (IN) and hyperactivity/impulsivity (HI) and, therefore, are particularly vulnerable to poor social and academic outcomes. read more here.
Keywords: hyperactivity impulsivity; screening inattention; inattention hyperactivity; children haemophilia ... See more keywords
The hidden joint in children with haemophilia on prophylaxis.
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DOI: 10.2139/ssrn.4234240
Abstract: Prophylaxis is the gold standard treatment for children with haemophilia (CWH). MRI studies revealed joint damage, even with this treatment; this suggests the presence of subclinical bleeding. In the case of children with haemophilia, it… read more here.
Keywords: damage; hidden joint; joint; prophylaxis ... See more keywords