Overview of the ChILD Research Network: A roadmap for progress and success in defining rare diseases
Sign Up to like & getrecommendations! Published in 2020 at "Pediatric Pulmonology"
DOI: 10.1002/ppul.24808
Abstract: Children's interstitial and diffuse lung diseases are a diverse group of rare lung disorders that present in childhood with diffuse pulmonary infiltrates and respiratory signs and symptoms. Children with these disorders face high morbidity and… read more here.
Keywords: research; progress; children interstitial; research network ... See more keywords
Acute exacerbations in children’s interstitial lung disease
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DOI: 10.1136/thoraxjnl-2021-217941
Abstract: Introduction Acute exacerbations (AEs) increase morbidity and mortality of patients with chronic pulmonary diseases. Little is known about the characteristics and impact of AEs on children's interstitial lung disease (chILD). Methods The Kids Lung Register… read more here.
Keywords: children interstitial; lung; lung disease; acute exacerbations ... See more keywords
Pulmonary Aptamer Signatures in Children's Interstitial and Diffuse Lung Diseases.
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DOI: 10.1164/rccm.201903-0547oc
Abstract: RATIONALE Biomarker signatures are needed in children with interstitial and diffuse lung disease (chILD) to improve diagnostic approaches, increase our understanding of disease pathogenesis, monitor disease progression, and develop new treatment strategies. Proteomic technology using… read more here.
Keywords: pulmonary aptamer; children interstitial; interstitial diffuse; diffuse lung ... See more keywords
Heterogenous Disease Course and Long-term Outcome of Children's Interstitial Lung Disease Related to Filamin A Gene Variants.
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DOI: 10.1513/annalsats.202202-142oc
Abstract: RATIONALE Variable disease course and outcomes have been reported in Children's interstitial lung disease (ChILD) associated with Filamin A gene (FLNA) variants. OBJECTIVES To further delineate long term respiratory outcomes and identify potential contributing factors… read more here.
Keywords: disease; children interstitial; lung disease; disease course ... See more keywords