Measures of nocturnal oxyhemoglobin desaturation in children with neuromuscular disease or Prader‐Willi syndrome
Sign Up to like & getrecommendations! Published in 2020 at "Pediatric Pulmonology"
DOI: 10.1002/ppul.24899
Abstract: Evidence for nocturnal oximetry interpretation in patients with abnormal neuromuscular function is limited. We aimed to compare children with neuromuscular disease (NMD) or Prader‐Willi syndrome (PWS) to otherwise healthy subjects with obstructive sleep‐disordered breathing (SDB)… read more here.
Keywords: willi syndrome; prader willi; neuromuscular disease; children neuromuscular ... See more keywords
Oscillometry: a substitute of spirometry in children with neuromuscular diseases?
Sign Up to like & getrecommendations! Published in 2022 at "Pediatric pulmonology"
DOI: 10.1002/ppul.25923
Abstract: INTRODUCTION Spirometry plays an important role in the assessment of possible respiratory failure in children with neuromuscular diseases (NMDs). However, obtaining reliable spirometry results is a major challenge. We studied the relation between oscillometry and… read more here.
Keywords: substitute; children neuromuscular; neuromuscular diseases; spirometry ... See more keywords
COVID-19 in children with neuromuscular disorders
Sign Up to like & getrecommendations! Published in 2021 at "Journal of Neurology"
DOI: 10.1007/s00415-020-10339-y
Abstract: Objective Children with neuromuscular disorders have been assumed to be a particularly vulnerable population since the beginning of COVID-19. Although this is a plausible hypothesis, there is no evidence that complications or mortality rates in… read more here.
Keywords: neurology; neuromuscular disorders; course covid; covid children ... See more keywords
Inflammation in children with neuromuscular disorders and sleep disordered breathing.
Sign Up to like & getrecommendations! Published in 2020 at "Sleep medicine"
DOI: 10.1016/j.sleep.2020.03.032
Abstract: INTRODUCTION Paediatric obstructive sleep apnoea is associated with systemic inflammation and co-morbidities. We assessed whether sleep disordered breathing (SDB) due to neuromuscular weakness was associated with elevated airway and systemic pro-inflammatory cytokines. METHODS Consecutive neuromuscular… read more here.
Keywords: sleep disordered; inflammation children; serum; children neuromuscular ... See more keywords
The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?
Sign Up to like & getrecommendations! Published in 2020 at "Health and Quality of Life Outcomes"
DOI: 10.1186/s12955-020-01467-0
Abstract: Background Life extension by medical interventions and health-related quality of life (HRQOL) are sometimes conflicting aspects of medical care. Long-term ventilation in children with neuromuscular disease is a well-established life-extending procedure and often at the… read more here.
Keywords: neuromuscular diseases; children neuromuscular; health; quality life ... See more keywords
Pandemic decrease of in-person physiotherapy as a factor in parent perceived decline in function in children with neuromuscular disorders.
Sign Up to like & getrecommendations! Published in 2022 at "Journal of pediatric rehabilitation medicine"
DOI: 10.3233/prm-210002
Abstract: PURPOSE Restrictions related to the COVID-19 pandemic can negatively affect patients who require physiotherapy. This study aimed to analyze the consequences of limited physiotherapy on the functional state of children with neuromuscular diseases (NMD). In… read more here.
Keywords: person physiotherapy; pandemic decrease; test; children neuromuscular ... See more keywords