A companion to the preclinical common data elements for rodent genetic epilepsy models. A Report of the TASK3-WG1B: Pediatric and Genetic models Working Group of the ILAE/AES Joint Translational Task Force.
Sign Up to like & getrecommendations! Published in 2022 at "Epilepsia open"
DOI: 10.1002/epi4.12642
Abstract: Rodent models of epilepsy remain the cornerstone of research into the mechanisms underlying genetic epilepsy. Reproducibility of experiments using these rodent models, occurring across a diversity of laboratories and commercial vendors, remains an issue impacting… read more here.
Keywords: common data; genetic epilepsy; task3 wg1b; data elements ... See more keywords
Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics
Sign Up to like & getrecommendations! Published in 2019 at "Neurocritical Care"
DOI: 10.1007/s12028-019-00724-5
Abstract: BackgroundThe National Institute of Neurological Disorders and Stroke (NINDS) Common Data Elements (CDEs) have been generated to standardize and define terms used by the scientific community. The widespread use of these CDEs promotes harmonized data… read more here.
Keywords: intracranial aneurysms; participant subject; data elements; common data ... See more keywords
Distributed common data environment using blockchain and Interplanetary File System for secure BIM-based collaborative design
Sign Up to like & getrecommendations! Published in 2021 at "Automation in Construction"
DOI: 10.1016/j.autcon.2021.103851
Abstract: Abstract Existing platforms for collaborative BIM design have a centralized system architecture, which suffers cybersecurity risks of design data manipulation and denial of access, leading to a loss of data traceability, a decline in design… read more here.
Keywords: distributed common; common data; system; data environment ... See more keywords
Common data elements and data management: Remedy to cure underpowered preclinical studies
Sign Up to like & getrecommendations! Published in 2017 at "Epilepsy Research"
DOI: 10.1016/j.eplepsyres.2016.11.010
Abstract: Lack of translation of data obtained in preclinical trials to clinic has kindled researchers to develop new methodologies to increase the power and reproducibility of preclinical studies. One approach relates to harmonization of data collection… read more here.
Keywords: preclinical studies; research; data elements; common data ... See more keywords
A common language for Gulf War Illness (GWI) research studies: GWI common data elements.
Sign Up to like & getrecommendations! Published in 2021 at "Life sciences"
DOI: 10.1016/j.lfs.2021.119818
Abstract: AIMS The Gulf War Illness programs (GWI) of the United States Department of Veteran Affairs and the Department of Defense Congressionally Directed Medical Research Program collaborated with experts to develop Common Data Elements (CDEs) to… read more here.
Keywords: gulf war; research; war illness; gwi research ... See more keywords
Transforming French Electronic Health Records into the Observational Medical Outcome Partnership's Common Data Model: A Feasibility Study
Sign Up to like & getrecommendations! Published in 2020 at "Applied clinical informatics"
DOI: 10.1055/s-0039-3402754
Abstract: BACKGROUND Common data models (CDMs) enable data to be standardized, and facilitate data exchange, sharing, and storage, particularly when the data have been collected via distinct, heterogeneous systems. Moreover, CDMs provide tools for data quality… read more here.
Keywords: system; omop cdm; medical outcome; observational medical ... See more keywords
Preclinical Common Data Elements for Traumatic Brain Injury Research: Progress and Use Cases.
Sign Up to like & getrecommendations! Published in 2020 at "Journal of neurotrauma"
DOI: 10.1089/neu.2020.7328
Abstract: Traumatic brain injury (TBI) is an extremely complex condition due to heterogeneity in injury mechanism, underlying conditions, and secondary injury. Preclinical and clinical researchers face challenges with reproducibility that negatively impact translation and therapeutic development… read more here.
Keywords: research; traumatic brain; data elements; common data ... See more keywords
Go BIG and Go Global: Executing Large-Scale, Multi-Site Pharmacoepidemiologic Studies Using Real-world Data.
Sign Up to like & getrecommendations! Published in 2022 at "American journal of epidemiology"
DOI: 10.1093/aje/kwac096
Abstract: At the time medical products are approved, we rarely know enough about their comparative safety and effectiveness vis-à-vis alternative therapies to advise patients and providers. Postmarket evidence generation to study rare adverse events following medical… read more here.
Keywords: world data; multi site; common data; real world ... See more keywords
Integrating real-world data from Brazil and Pakistan into the OMOP common data model and standardized health analytics framework to characterize COVID-19 in the Global South
Sign Up to like & getrecommendations! Published in 2022 at "Journal of the American Medical Informatics Association : JAMIA"
DOI: 10.1093/jamia/ocac180
Abstract: Abstract Objectives The aim of this work is to demonstrate the use of a standardized health informatics framework to generate reliable and reproducible real-world evidence from Latin America and South Asia towards characterizing coronavirus disease… read more here.
Keywords: health; common data; data model; global south ... See more keywords
NCOG-55. HARMONIZING LANGUAGE TO MAXIMIZE IMPACT: AN UPDATE ON COMMON DATA ELEMENTS FOR MENINGIOMA AND REVIEW OF CLINICAL TRIALS IN MENINGIOMA
Sign Up to like & getrecommendations! Published in 2020 at "Neuro-oncology"
DOI: 10.1093/neuonc/noaa215.593
Abstract: With increasing studies reporting on the molecular profiling of meningiomas, there is a need to harmonize language used to capture clinical data across centers to ensure that molecular alterations are appropriately linked to clinical variables… read more here.
Keywords: language; data elements; neuro oncology; common data ... See more keywords
Toward International Harmonization of Breast Implant Registries: International Collaboration of Breast Registry Activities Global Common Data Set
Sign Up to like & getrecommendations! Published in 2020 at "Plastic and Reconstructive Surgery"
DOI: 10.1097/prs.0000000000006969
Abstract: Background: The Poly Implant Prothèse incident and breast implant-associated anaplastic large cell lymphoma have pointed to the need for uniform registries for breast implants as key features to monitoring the outcomes of breast implant surgeries… read more here.
Keywords: common data; breast implant; international collaboration; implant registries ... See more keywords