All your data (effectively) belong to us: data practices among direct-to-consumer genetic testing firms
Sign Up to like & getrecommendations! Published in 2017 at "Genetics in Medicine"
DOI: 10.1038/gim.2016.136
Abstract: Purpose:Direct-to-consumer genetic testing (DTC-GT) has become a convenient method to help people to understand their genetic makeup. Owing in part to concerns regarding confidentiality, privacy, and secondary use of data, professional and government bodies created… read more here.
Keywords: direct consumer; consumer genetic; genetic testing; use ... See more keywords
A Review of the Legislation of Direct-to-Consumer Genetic Testing in China.
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DOI: 10.1089/hum.2023.29237.cyi
Abstract: Direct-to-consumer genetic test (DTC-GT) has been developing into an enormous market in China. Though no existing laws are directly applicable to DTC-GT, relevant laws and regulations are gradually being improved. In this study, we discuss… read more here.
Keywords: direct consumer; legislation direct; consumer genetic; review legislation ... See more keywords
Consumer Testing for Disease Risk: ACOG Committee Opinion Summary, Number 816.
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DOI: 10.1097/aog.0000000000004201
Abstract: ABSTRACT With the increased emphasis on patient-driven health care and readily available access to patients as consumers through the internet and media, many genetic testing companies are marketing directly to consumers. Direct-to-consumer genetic testing may… read more here.
Keywords: genetic testing; risk; direct consumer; consumer genetic ... See more keywords
Direct to consumer genetic and genomic testing with associated implications for advanced nursing practice
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DOI: 10.1097/jxx.0000000000000624
Abstract: ABSTRACT Direct-to-consumer genetic and genomic testing (DTCGT) has paved the way for consumers to gain information about their genetic makeup. Consumers may seek DTCGT to estimate ethnic background, identify genetic relations, or obtain raw DNA… read more here.
Keywords: consumer genetic; direct consumer; genetic genomic; genomic testing ... See more keywords
Nutritionist Guide to Direct-to-Consumer Genetic Tests and Precision Nutrition
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DOI: 10.1097/nt.0000000000000360
Abstract: Analogous to precision medicine, precision nutrition aims to tailor nutritional recommendations based on personal needs to optimize health. The field of nutritional genomics, which refers to the bidirectional interplay between dietary nutrients and the genome,… read more here.
Keywords: precision nutrition; nutritional genomics; nutrition; direct consumer ... See more keywords
Limitations of direct-to-consumer genetic testing for age-related macular degeneration.
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DOI: 10.1177/11206721231178054
Abstract: The availability of direct-to-consumer genetic testing (DTCGT) for age-related macular degeneration (AMD) provides the public with access to disease risk estimations that may be used to guide lifestyle adjustments. However, AMD development risk is more… read more here.
Keywords: related macular; age related; direct consumer; macular degeneration ... See more keywords
Polygenic Scores in the Direct-to-Consumer Setting: Challenges and Opportunities for a New Era in Consumer Genetic Testing
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DOI: 10.3390/jpm13040573
Abstract: Direct-to-consumer (DTC) genetic tests have generated considerable scholarly attention and public intrigue. Although the current consumer genetic testing regime relies on the reporting of individual variants of interest to consumers, there has recently been interest… read more here.
Keywords: polygenic scores; direct consumer; genetic testing; consumer ... See more keywords
Direct-to-Consumer Genetic Testing Data Privacy: Key Concerns and Recommendations Based on Consumer Perspectives
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DOI: 10.3390/jpm9020025
Abstract: Direct-to-consumer genetic testing (DTC-GT) companies are engaging health consumers in unprecedented ways and leveraging the genetic information they collect to further engage health companies. This has produced controversy about DTC-GT consumer expectations, standards, and perceptions… read more here.
Keywords: dtc; direct consumer; consumer genetic; genetic testing ... See more keywords