Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research
Sign Up to like & getrecommendations! Published in 2019 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2019.9550
Abstract: This survey study examines the association between various presentations of consent forms and differences in electronic health record and biospecimen sharing rates among patients. read more here.
Keywords: patient perspectives; perspectives decisions; share medical; data biospecimens ... See more keywords
Hospitals should act now to notify patients about research use of their data and biospecimens
Sign Up to like & getrecommendations! Published in 2020 at "Nature Medicine"
DOI: 10.1038/s41591-020-0795-6
Abstract: Private industry is increasingly soliciting hospitals to sell or share health data and biospecimens, but current laws offer more disclosure and consent protections for research participants than for patients receiving clinical care. Hospitals can offer… read more here.
Keywords: research use; research; patients research; data biospecimens ... See more keywords