A companion to the preclinical common data elements for rodent genetic epilepsy models. A Report of the TASK3-WG1B: Pediatric and Genetic models Working Group of the ILAE/AES Joint Translational Task Force.
Sign Up to like & getrecommendations! Published in 2022 at "Epilepsia open"
DOI: 10.1002/epi4.12642
Abstract: Rodent models of epilepsy remain the cornerstone of research into the mechanisms underlying genetic epilepsy. Reproducibility of experiments using these rodent models, occurring across a diversity of laboratories and commercial vendors, remains an issue impacting… read more here.
Keywords: common data; genetic epilepsy; task3 wg1b; data elements ... See more keywords
Global Experience of Diabetes Registries: A Systematic Review.
Sign Up to like & getrecommendations! Published in 2020 at "Advances in experimental medicine and biology"
DOI: 10.1007/5584_2020_493
Abstract: INTRODUCTION Diabetes mellitus (DM) is as a chronic metabolic disease, and disease registry plays an important role in the care of diabetes. Systematic review of diabetes registry systems in different countries has not been conducted… read more here.
Keywords: diabetes registry; systematic review; registry systems; data elements ... See more keywords
Agreement assessment of key maternal and newborn data elements between birth registry and Clinical Administrative Hospital Databases in Ontario, Canada
Sign Up to like & getrecommendations! Published in 2019 at "Archives of Gynecology and Obstetrics"
DOI: 10.1007/s00404-019-05177-x
Abstract: PurposeSince 2012, BORN Ontario, a maternal-newborn registry, has collected data on every birth in Ontario. To ensure data quality, we assessed the reliability of key elements collected in BORN by comparing these with like data… read more here.
Keywords: agreement; maternal newborn; percentage agreement; data elements ... See more keywords
Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics
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DOI: 10.1007/s12028-019-00724-5
Abstract: BackgroundThe National Institute of Neurological Disorders and Stroke (NINDS) Common Data Elements (CDEs) have been generated to standardize and define terms used by the scientific community. The widespread use of these CDEs promotes harmonized data… read more here.
Keywords: intracranial aneurysms; participant subject; data elements; common data ... See more keywords
Development a national minimum data set (MDS) of the information management system for disability in Iran.
Sign Up to like & getrecommendations! Published in 2019 at "Disability and health journal"
DOI: 10.1016/j.dhjo.2019.05.008
Abstract: BACKGROUND Disability management and policymaking require complete and valid data on disability. OBJECTIVE Development of a minimum data set (MDS) of the information management system for disability in Iran. METHODS This descriptive, cross-sectional study was… read more here.
Keywords: disability; data elements; minimum data; iran ... See more keywords
Common data elements and data management: Remedy to cure underpowered preclinical studies
Sign Up to like & getrecommendations! Published in 2017 at "Epilepsy Research"
DOI: 10.1016/j.eplepsyres.2016.11.010
Abstract: Lack of translation of data obtained in preclinical trials to clinic has kindled researchers to develop new methodologies to increase the power and reproducibility of preclinical studies. One approach relates to harmonization of data collection… read more here.
Keywords: preclinical studies; research; data elements; common data ... See more keywords
Using Existing Clinical Information Models for Dutch Quality Registries to Reuse Data and Follow COUMT Paradigm
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DOI: 10.1055/s-0043-1767681
Abstract: Abstract Background Reuse of health care data for various purposes, such as the care process, for quality measurement, research, and finance, will become increasingly important in the future; therefore, “Collect Once Use Many Times” (COUMT).… read more here.
Keywords: information models; quality; quality registries; clinical information ... See more keywords
Preclinical Common Data Elements for Traumatic Brain Injury Research: Progress and Use Cases.
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DOI: 10.1089/neu.2020.7328
Abstract: Traumatic brain injury (TBI) is an extremely complex condition due to heterogeneity in injury mechanism, underlying conditions, and secondary injury. Preclinical and clinical researchers face challenges with reproducibility that negatively impact translation and therapeutic development… read more here.
Keywords: research; traumatic brain; data elements; common data ... See more keywords
NCOG-55. HARMONIZING LANGUAGE TO MAXIMIZE IMPACT: AN UPDATE ON COMMON DATA ELEMENTS FOR MENINGIOMA AND REVIEW OF CLINICAL TRIALS IN MENINGIOMA
Sign Up to like & getrecommendations! Published in 2020 at "Neuro-oncology"
DOI: 10.1093/neuonc/noaa215.593
Abstract: With increasing studies reporting on the molecular profiling of meningiomas, there is a need to harmonize language used to capture clinical data across centers to ensure that molecular alterations are appropriately linked to clinical variables… read more here.
Keywords: language; data elements; neuro oncology; common data ... See more keywords
Automated Metrics for Potential Adverse Outcomes in Pediatric Antimicrobial Stewardship
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DOI: 10.1093/ofid/ofx163.1293
Abstract: Abstract Background Many prescribers may question the safety of restricting antibiotic use at their own institution. Measurement of potential adverse outcomes relevant to antimicrobial stewardship may increase the acceptability of stewardship interventions. Methods Antibiotic prescribing,… read more here.
Keywords: adverse outcomes; potential adverse; data elements; metrics potential ... See more keywords
Common data elements to standardize genomics studies in cerebral palsy
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DOI: 10.1111/dmcn.15245
Abstract: To define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP). read more here.
Keywords: common data; elements standardize; studies cerebral; data elements ... See more keywords