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Published in 2025 at "Journal of Genetic Counseling"
DOI: 10.1002/jgc4.70101
Abstract: Genetic data, more than ever, are a soughtâafter asset, often transferred or repurposed under broad privacy policies with limited transparency and passive consent. With the increasing frequency of company mergers and acquisitions within the genetics…
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Keywords:
ownership;
genetics;
data ownership;
privacy ... See more keywords
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Published in 2023 at "IEEE Transactions on Services Computing"
DOI: 10.1109/tsc.2021.3128959
Abstract: Social data produced from widely emerged social media activities are expected to promote information dissemination and engagement, or even make business intelligence more powerful. However, the recent increase in social media incidents of illegal surveillance…
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Keywords:
social media;
data ownership;
social data;
applications return ... See more keywords
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Published in 2024 at "Comparative Studies of South Asia, Africa and the Middle East"
DOI: 10.1215/1089201x-11470423
Abstract: Abstract:Over the last few years, there has been a resurgence of interest in addressing the problematic politics and ethics of global North/global South relations within social science research projects. This essay outlines the ethical concerns…
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Keywords:
ethics data;
data ownership;
funded research;
social science ... See more keywords
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Published in 2024 at "Algorithms"
DOI: 10.3390/a17040169
Abstract: Data meshes are an approach to data architecture and organization that treats data as a product and focuses on decentralizing data ownership and access. It has recently emerged as a field that presents quite a…
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Keywords:
ownership;
ownership governance;
data ownership;
user ... See more keywords