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Published in 2018 at "Journal of Genetic Counseling"
DOI: 10.1007/s10897-018-0213-0
Abstract: The aim of this pilot study was to evaluate Children’s at Home (C@H), a dedicated social media website for parents of adolescents with neurofibromatosis type 1 (NF1). The interventional study included two phases: (1) creating…
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Keywords:
social media;
pilot study;
parents adolescents;
dedicated social ... See more keywords