Challenges in disclosing and receiving a diagnosis of dementia: a systematic review of practice from the perspectives of people with dementia, carers, and healthcare professionals
Sign Up to like & getrecommendations! Published in 2021 at "International Psychogeriatrics"
DOI: 10.1017/s1041610221000119
Abstract: ABSTRACT Background: Disclosing a diagnosis of dementia is a key process involving people with dementia, carers, and healthcare professionals (HCPs) that can facilitate access to treatment and support. Receiving a diagnosis of dementia may represent… read more here.
Keywords: diagnosis; people dementia; receiving diagnosis; diagnosis dementia ... See more keywords
48 Accessing Respite Services for People with Dementia and Their Carers: A Qualitative Study with Multiple Stakeholders
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DOI: 10.1093/ageing/afz102.08
Abstract: People with dementia and carers do not always access respite services in a timely manner, and in some cases, they do not access respite services at all. While carers’ perspectives on respite access have been… read more here.
Keywords: multiple stakeholders; dementia carers; people dementia; respite services ... See more keywords
Effects of an e-health intervention ‘iSupport’ for reducing distress of dementia carers: protocol for a randomised controlled trial and feasibility study
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DOI: 10.1136/bmjopen-2022-064314
Abstract: Introduction In the UK, National Health Service (NHS) guidelines recommend that informal carers of people living with dementia should be offered training to help them develop care skills and manage their own physical and mental… read more here.
Keywords: dementia carers; health; isupport; trial ... See more keywords
Technology-based tools and services for people with dementia and carers: Mapping technology onto the dementia care pathway
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DOI: 10.1177/1471301217691617
Abstract: The extent to which technology may be able to support people with dementia and their carers along the care pathway and in different care settings is of interest to policy makers and governments. In this… read more here.
Keywords: dementia carers; people dementia; care pathway; technology ... See more keywords
Mind the gap: Comparing perspectives of service providers to the needs of people with dementia living in the community
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DOI: 10.1177/1471301220947837
Abstract: Introduction Research with West Australian people with dementia and their carers living in the community identified that they have a diverse range of needs. However, little is known about the needs of people with dementia… read more here.
Keywords: dementia carers; people dementia; needs people; service providers ... See more keywords
Exploring the feasibility of an individual cognitive stimulation therapy application and related technology for use by people with dementia and carers in Indonesia: A mixed-method study.
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DOI: 10.1177/14713012211018003
Abstract: BACKGROUND Cognitive stimulation therapy (CST) is a psychosocial intervention for people with dementia and can benefit cognition and quality of life. A touch-screen individualised CST (iCST) application has been developed to improve on accessibility and… read more here.
Keywords: dementia carers; people dementia; stimulation; application ... See more keywords
Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review
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DOI: 10.1177/14713012211053971
Abstract: This article reports on findings of a scoping review aimed to map the published literature concerning the impact of Covid-19 on the care and quality of life of people living with dementia and their carers.… read more here.
Keywords: dementia carers; care quality; impact; care ... See more keywords
Media discourses on the socio-spatial rights of older people living with dementia and their carers
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DOI: 10.1177/14713012221137961
Abstract: Introduction Media discourses about people living with dementia and carers contribute to the ways in which public, social spaces are designed, planned, and used. Negative media discourses play an important role in the socio-spatial exclusion… read more here.
Keywords: dementia carers; living dementia; people living; spatial rights ... See more keywords
Disease severity accounts for minimal variance of quality of life in people with dementia and their carers: analyses of cross-sectional data from the MODEM study
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DOI: 10.1186/s12877-020-01629-1
Abstract: Background Due to the progressive nature of dementia, it is important to understand links between disease severity and health-related outcomes. The aim of this study is to explore the relationship between disease severity and the… read more here.
Keywords: dementia carers; people dementia; study; severity ... See more keywords
Key components of post-diagnostic support for people with dementia and their carers: A qualitative study
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DOI: 10.1371/journal.pone.0260506
Abstract: Background There has been a shift in focus of international dementia policies from improving diagnostic rates to enhancing the post-diagnostic support provided to people with dementia and their carers. There is, however, little agreement over… read more here.
Keywords: post diagnostic; support; components post; dementia carers ... See more keywords
iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers
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DOI: 10.3390/ijerph20010127
Abstract: Young dementia carers need to be recognised and supported in their role. They need help to understand the illness, what changes are expected and how it can affect their family member. Many support services, partly… read more here.
Keywords: dementia carers; health; isupport young; young carers ... See more keywords