Timely diagnosis of dementia? Family carers' experiences in 5 European countries
Sign Up to like & getrecommendations! Published in 2019 at "International Journal of Geriatric Psychiatry"
DOI: 10.1002/gps.4997
Abstract: Timely diagnosis of dementia is recommended in national strategies. To what extent is it occurring across Europe, what factors are associated with it, and what is the impact on carers emotions of quality of diagnostic… read more here.
Keywords: timely diagnosis; diagnosis dementia; experiences european; family carers ... See more keywords
How do Admiral Nurses and care home staff help people living with dementia and their family carers prepare for end‐of‐life?
Sign Up to like & getrecommendations! Published in 2020 at "International Journal of Geriatric Psychiatry"
DOI: 10.1002/gps.5256
Abstract: To explore current practice and the role of UK care homes and Admiral Nurses in helping people living with dementia and their family carers prepare for end‐of‐life. read more here.
Keywords: carers prepare; living dementia; admiral nurses; family carers ... See more keywords
Potentially preventable hospitalizations in dementia: family caregiver experiences
Sign Up to like & getrecommendations! Published in 2017 at "International Psychogeriatrics"
DOI: 10.1017/s1041610217000217
Abstract: ABSTRACT Background: Health crises in persons living with dementia challenge their caregivers to make pivotal decisions, often under pressure, and to act in new ways on behalf of their care recipient. Disruption of everyday routines… read more here.
Keywords: caregiver experiences; family; health; dementia family ... See more keywords
Patterns of Family Conflict and Accusations of Abuse in Dementia Family Caregivers: A Latent Class Analysis
Sign Up to like & getrecommendations! Published in 2024 at "The Gerontologist"
DOI: 10.1093/geront/gnae108
Abstract: Abstract Background and Objectives Family conflict is a stressor for dementia family caregivers, yet its impact may differ based on the relationship between caregivers and their recipients. This study’s objectives were to categorize caregivers into… read more here.
Keywords: family; relationship; family caregivers; family conflict ... See more keywords
How do people with dementia and family carers value dementia‐specific quality of life states? An explorative “Think Aloud” study
Sign Up to like & getrecommendations! Published in 2019 at "Australasian Journal on Ageing"
DOI: 10.1111/ajag.12646
Abstract: To investigate the decision‐making processes applied by people with dementia and family carers participating in using health economic approaches to value dementia‐specific quality of life states. read more here.
Keywords: people dementia; value dementia; specific quality; family carers ... See more keywords
Impact of diagnosed (vs undiagnosed) dementia on family caregiving experiences
Sign Up to like & getrecommendations! Published in 2022 at "Journal of the American Geriatrics Society"
DOI: 10.1111/jgs.18155
Abstract: Most older adults with Alzheimer's disease and related dementias (ADRD) do not receive a timely formal diagnosis, although formal diagnosis is linked to improved outcomes. Little is known about how a recognized formal diagnosis impacts… read more here.
Keywords: diagnosed undiagnosed; family; impact diagnosed; undiagnosed dementia ... See more keywords
'Four walls and a garden': Exploring the experiences of families affected by dementia during the COVID-19 pandemic.
Sign Up to like & getrecommendations! Published in 2021 at "Dementia"
DOI: 10.1177/14713012211059021
Abstract: INTRODUCTION When the first national COVID-19 lockdown came into effect in the UK in March 2020, life changed significantly. Some services and social contacts for people with dementia and their families stopped, while others, for… read more here.
Keywords: family carers; experiences families; people dementia; dementia family ... See more keywords
The impact of dementia family caregiving on adolescent well-being: A scoping review
Sign Up to like & getrecommendations! Published in 2023 at "Dementia"
DOI: 10.1177/14713012231161385
Abstract: With rates of dementia on the rise and upward trends in multigenerational households, the number of families providing care to persons with dementia is likely to increase. Although caregiver stress in adults has been well-documented,… read more here.
Keywords: impact dementia; dementia family; scoping review; family caregiving ... See more keywords
Learning to use music as a resource: the experiences of people with dementia and their family care partners participating in a home-based skill-sharing music intervention: a HOMESIDE sub-study
Sign Up to like & getrecommendations! Published in 2023 at "Frontiers in Medicine"
DOI: 10.3389/fmed.2023.1205784
Abstract: An increasing number of people with dementia receive informal care from family members to help them remain living in the community. Music therapy is particularly beneficial for supporting the wellbeing of people living with dementia.… read more here.
Keywords: music; people dementia; care; dementia family ... See more keywords
“Doing Things Together Is What It’s About”: An Interpretative Phenomenological Analysis of the Experience of Group Therapeutic Songwriting From the Perspectives of People With Dementia and Their Family Caregivers
Sign Up to like & getrecommendations! Published in 2021 at "Frontiers in Psychology"
DOI: 10.3389/fpsyg.2021.598979
Abstract: Background The wellbeing of people living with dementia and their family caregivers may be impacted by stigma, changing roles, and limited access to meaningful opportunities as a dyad. Group therapeutic songwriting (TSW) and qualitative interviews… read more here.
Keywords: people dementia; music; group; family ... See more keywords
A scoping review of outcome measures for people living with dementia and family supporters to evaluate Recovery College dementia courses
Sign Up to like & getrecommendations! Published in 2025 at "Frontiers in Psychiatry"
DOI: 10.3389/fpsyt.2025.1591772
Abstract: Introduction Recovery Colleges (RC/RCs) aim to promote personal recovery through co-produced courses, grounded in the CHIME (Connectedness, Hope, Identity, Meaning, Empowerment) framework. The DiSCOVERY research programme noted that RC dementia courses may offer a person-centred… read more here.
Keywords: dementia; dementia courses; outcome measures; recovery ... See more keywords