Perspectives of Patients With Dermatofibrosarcoma Protuberans on Diagnostic Delays, Surgical Outcomes, and Nonprotuberance
Sign Up to like & getrecommendations! Published in 2019 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2019.10413
Abstract: Key Points Question Can dermatofibrosarcoma protuberans Facebook patient support groups work with researchers to determine risk of recurrence and metastasis, surgical outcomes, symptoms of recurrence, and sources of diagnostic delay? Findings In this multiple-choice survey… read more here.
Keywords: perspectives patients; surgical outcomes; patients dermatofibrosarcoma; protuberans diagnostic ... See more keywords
Understanding delays in breast cancer diagnosis in Africa: Key insights and contributing factors
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DOI: 10.1002/ijc.70008
Abstract: Africa has the highest age‐standardized breast cancer (BC) mortality rates, largely due to diagnostic delays. Therefore, this scoping review aims to identify individual‐level factors that contribute to diagnostic delay of BC in African women. We… read more here.
Keywords: diagnosis; cancer; breast cancer; scoping review ... See more keywords
Diagnostic delays among COVID-19 patients with a second concurrent diagnosis.
Sign Up to like & getrecommendations! Published in 2023 at "Journal of hospital medicine"
DOI: 10.1002/jhm.13063
Abstract: BACKGROUND Little is known about the effect of a new pandemic on diagnostic errors. OBJECTIVE We aimed to identify delayed second diagnoses among patients presenting to the emergency department (ED) with COVID-19. DESIGNS An observational… read more here.
Keywords: evidence second; covid patients; diagnostic delays; diagnosis ... See more keywords
Diagnostic delays in Middle East respiratory syndrome coronavirus patients and health systems
Sign Up to like & getrecommendations! Published in 2019 at "Journal of Infection and Public Health"
DOI: 10.1016/j.jiph.2019.04.002
Abstract: Abstract Background Although Middle East respiratory syndrome coronavirus (MERS-CoV) diagnostic delays remain a major challenge in health systems, the source of delays has not been recognized in the literature. The aim of this study is… read more here.
Keywords: middle east; delay; health; diagnostic delays ... See more keywords
Factors associated with tuberculosis care-seeking and diagnostic delays among childhood pulmonary tuberculosis in Zhejiang Province, China: a 10-year retrospective study
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DOI: 10.1038/s41598-024-68173-5
Abstract: We conducted a retrospective study to investigate risk factors for tuberculosis care-seeking delay and diagnostic delays among pediatric pulmonary tuberculosis cases in Zhejiang Province from 2013 to 2022. Among 1274 cases, 49.61% experienced tuberculosis care-seeking… read more here.
Keywords: care; care seeking; tuberculosis; retrospective study ... See more keywords
PD02 Xeroderma pigmentosum: from first symptoms to diagnosis
Sign Up to like & getrecommendations! Published in 2025 at "British Journal of Dermatology"
DOI: 10.1093/bjd/ljaf085.254
Abstract: There is marked heterogeneity in the clinical features of xeroderma pigmentosum (XP), both between and within complementation groups. Effective management relies on early diagnosis, stringent photoprotection to mitigate skin cancer-related morbidity and mortality, and regular… read more here.
Keywords: diagnosis; mean years; xeroderma pigmentosum; diagnostic delays ... See more keywords
Reducing diagnostic delays in acute hepatic porphyria using health records data and machine learning
Sign Up to like & getrecommendations! Published in 2024 at "Journal of the American Medical Informatics Association : JAMIA"
DOI: 10.1093/jamia/ocae141
Abstract: BACKGROUND Acute hepatic porphyria (AHP) is a group of rare but treatable conditions associated with diagnostic delays of 15 years on average. The advent of electronic health records (EHR) data and machine learning (ML) may… read more here.
Keywords: diagnosis; acute hepatic; hepatic porphyria; data machine ... See more keywords
Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays
Sign Up to like & getrecommendations! Published in 2017 at "Orphanet Journal of Rare Diseases"
DOI: 10.1186/s13023-017-0622-4
Abstract: BackgroundChildren and families living with rare disease often experience significant health, psychosocial, economic burdens and diagnostic delays. Experiences appear to be constant, regardless of the specific rare disease diagnosis. Systematically collected Australian data to support… read more here.
Keywords: living rare; diagnosis; rare diseases; disease ... See more keywords
A clinically-guided unsupervised clustering approach to recommend symptoms of disease associated with diagnostic opportunities
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DOI: 10.1515/dx-2022-0044
Abstract: Abstract Objectives A first step in studying diagnostic delays is to select the signs, symptoms and alternative diseases that represent missed diagnostic opportunities. Because this step is labor intensive requiring exhaustive literature reviews, we developed… read more here.
Keywords: diagnostic opportunities; diagnostic delays; clustering approach; clinically guided ... See more keywords
Frequency and Duration of, and Risk Factors for, Diagnostic Delays Associated with Histoplasmosis
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DOI: 10.3390/jof8050438
Abstract: Histoplasmosis is often confused with other diseases leading to diagnostic delays. We estimated the incidence, length of, and risk factors for, diagnostic delays associated with histoplasmosis. Using data from IBM Marketscan, 2001–2017, we found all… read more here.
Keywords: diagnostic delays; number; risk factors; factors diagnostic ... See more keywords