Articles with "disclosure process" as a keyword



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Exploring parental cystic fibrosis disclosure to well children

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Published in 2022 at "Journal of Genetic Counseling"

DOI: 10.1002/jgc4.1658

Abstract: Cystic fibrosis (CF), a genetic disease and chronic illness, affects multiple organ systems and requires exceptional medical care and treatment. Few studies have assessed the diagnosis disclosure process to well children when their sibling(s) have… read more here.

Keywords: well children; disclosure process; exploring parental; disclosure ... See more keywords