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Published in 2022 at "Journal of Genetic Counseling"
DOI: 10.1002/jgc4.1658
Abstract: Cystic fibrosis (CF), a genetic disease and chronic illness, affects multiple organ systems and requires exceptional medical care and treatment. Few studies have assessed the diagnosis disclosure process to well children when their sibling(s) have…
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Keywords:
well children;
disclosure process;
exploring parental;
disclosure ... See more keywords