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   Articles with "disease experience" as a keyword



Profiling disease experience in patients living with brain aneurysms by analyzing multimodal clinical data and quality of life measures

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recommendations! Published in 2025 at "Scientific Reports"

DOI: 10.1038/s41598-025-15544-1

Abstract: To explore the mental and physical health (MH, PH) on individuals living with brain aneurysms and to profile their differences in disease experience. In N = 111 patients the Short Form 36 Health Survey (SF-36) was assessed… read more here.

Keywords: living brain; brain aneurysms; brain; life ... See more keywords

Validation of the disease experience questionnaire for working age adults with chronic conditions

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recommendations! Published in 2020 at "European Journal of Public Health"

DOI: 10.1093/eurpub/ckaa166.1108

Abstract: Working age adults diagnosed with chronic diseases are growing in prevalence and not all of them manage to stay at work. Chronic conditions need a long-term response from the (occupational) health care system, which, however,… read more here.

Keywords: disease experience; age; disease; questionnaire ... See more keywords

Disease Experience of Patients With Differentiated Thyroid Cancer at Different Phases Based on Timing It Right Framework: A Qualitative Longitudinal Study.

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recommendations! Published in 2023 at "Cancer nursing"

DOI: 10.1097/ncc.0000000000001233

Abstract: BACKGROUND As the incidence of differentiated thyroid cancer (DTC) continues to rise globally, it is important to gain insight into the disease experience of cancer patients at different phases of the disease. However, surveys addressing… read more here.

Keywords: cancer; disease experience; different phases; care ... See more keywords

Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study

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recommendations! Published in 2019 at "Orphanet Journal of Rare Diseases"

DOI: 10.1186/s13023-019-1004-x

Abstract: BackgroundPatient reported outcome (PRO) information is crucial for establishing better patient-provider communication, improving shared decision-making between clinicians and patients, assessing patient responses to therapeutic interventions, and increasing satisfaction with care. We used the Brittle Bones… read more here.

Keywords: disease experience; pilot study; disease; patient ... See more keywords