When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System.
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DOI: 10.1590/0102-311x00058017
Abstract: Epidemiological criteria are used to determine when a disease is rare. Although the rates vary, studies commonly adopt a threshold of 65 cases per 100,000 inhabitants to define any single rare disease. However, when taken… read more here.
Keywords: diseases brazilian; brazilian unified; persons rare; rare diseases ... See more keywords
[Rare diseases in the Brazilian National Congress: analysis of parliamentary action].
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DOI: 10.1590/0102-311xpt167721
Abstract: Public policies that serve the Brazilian population with rare diseases are increasingly discussed, either regarding access to medicines, multidisciplinary care, therapeutic alternatives, or representativeness. Although the Brazilian Ministry of Health published in 2014 the Ordinance… read more here.
Keywords: national congress; congress analysis; brazilian national; diseases brazilian ... See more keywords