‘CTRL’: an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research
Sign Up to like & getrecommendations! Published in 2021 at "European Journal of Human Genetics"
DOI: 10.1038/s41431-020-00782-w
Abstract: The complexities of the informed consent process for participating in research in genomic medicine are well-documented. Inspired by the potential for Dynamic Consent to increase participant choice and autonomy in decision-making, as well as the… read more here.
Keywords: medicine; research; ctrl; genomic research ... See more keywords
Toward Dynamic Consent for Privacy-Aware Pervasive Health and Well-being: A Scoping Review and Research Directions
Sign Up to like & getrecommendations! Published in 2022 at "IEEE Pervasive Computing"
DOI: 10.1109/mprv.2022.3210747
Abstract: Recent advances in sensor-enabled services have facilitated the use of mobile, wearable, and IoT devices; for example, an extensive range of sensor data are used to automatically track symptoms and diagnose health and well-being status… read more here.
Keywords: health well; privacy; consent; dynamic consent ... See more keywords
METORY: Development of a Demand-Driven Blockchain-Based Dynamic Consent Platform Tailored for Clinical Trials
Sign Up to like & getrecommendations! Published in 2022 at "Frontiers in Medicine"
DOI: 10.3389/fmed.2022.837197
Abstract: The recent advent of the dynamic consent concept intensified the data integrity issue in clinical trials. Incorporating blockchain technology into a dynamic consent platform can be a feasible solution. Due to various clinical trial settings,… read more here.
Keywords: blockchain; platform; clinical trials; consent ... See more keywords
A GDPR-Compliant Dynamic Consent Mobile Application for the Australasian Type-1 Diabetes Data Network
Sign Up to like & getrecommendations! Published in 2023 at "Healthcare"
DOI: 10.3390/healthcare11040496
Abstract: Australia has a high prevalence of diabetes, with approximately 1.2 million Australians diagnosed with the disease. In 2012, the Australasian Diabetes Data Network (ADDN) was established with funding from the Juvenile Diabetes Research Foundation (JDRF).… read more here.
Keywords: data network; diabetes data; type diabetes; mobile application ... See more keywords