Including ELSI research questions in newborn screening pilot studies
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DOI: 10.1038/s41436-018-0101-x
Abstract: BackgroundThe evidence review processes for adding new conditions to state newborn screening (NBS) panels rely on data from pilot studies aimed at assessing the potential benefits and harms of screening. However, the consideration of ethical,… read more here.
Keywords: including elsi; newborn screening; elsi research; pilot studies ... See more keywords