Ethical preparedness and developments in genomic healthcare.
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DOI: 10.1136/jme-2022-108528
Abstract: Considerations of the notion of preparedness have come to the fore in the recent pandemic, highlighting a need to be better prepared to deal with sudden, unexpected and unwanted events. However, the concept of preparedness… read more here.
Keywords: developments genomic; genomic healthcare; ethical preparedness; preparedness developments ... See more keywords
Beyond regulatory approaches to ethics: making space for ethical preparedness in healthcare research
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Medical Ethics"
DOI: 10.1136/medethics-2021-108102
Abstract: Centralised, compliance-focused approaches to research ethics have been normalised in practice. In this paper, we argue that the dominance of such systems has been driven by neoliberal approaches to governance, where the focus on controlling… read more here.
Keywords: regulatory approaches; space; ethical preparedness; beyond regulatory ... See more keywords