Are existing validated severity scores for epidermolysis bullosa reflective of the burden of disease in patients with epidermolysis bullosa simplex?
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DOI: 10.1093/ced/llad069
Abstract: Our study demonstrates that severity scores do not correlate well with the impact localized EBS has on quality of life. There is paucity of literature exploring correlation between disease severity and PROMs in EB. Both… read more here.
Keywords: disease; epidermolysis bullosa; severity; existing validated ... See more keywords