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Published in 2019 at "European journal of cancer care"
DOI: 10.1111/ecc.13209
Abstract: OBJECTIVES This study aimed to explore the lived experience of parents with children who have had retinoblastoma. METHODS The study adopted a qualitative approach using the data collection method of written accounts. Eleven parents were…
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Keywords:
experience parents;
lived experience;
childhood eye;
cancer ... See more keywords
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Published in 2022 at "Public health nursing"
DOI: 10.1111/phn.13076
Abstract: OBJECTIVE The COVID-19 pandemic has resulted in major disruption to economic, health, education, and social systems. Families with preschool children experienced extraordinary strain during this time. This paper describes a qualitative study examining the experience…
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Keywords:
parents preschool;
preschool children;
children hawaii;
hawaii covid ... See more keywords
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Published in 2019 at "Orphanet Journal of Rare Diseases"
DOI: 10.1186/s13023-019-1134-1
Abstract: BackgroundGiven the inherent complexity of rare paediatric diseases and the sensitive emotional context of the situations they create (due to the patients’ age and the tense uncertainty surrounding the progression of the disease), communication between…
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Keywords:
children rare;
experience parents;
communication;
rare diseases ... See more keywords