Childhood eye cancer from a parental perspective: The lived experience of parents with children who have had retinoblastoma.
Sign Up to like & getrecommendations! Published in 2019 at "European journal of cancer care"
DOI: 10.1111/ecc.13209
Abstract: OBJECTIVES This study aimed to explore the lived experience of parents with children who have had retinoblastoma. METHODS The study adopted a qualitative approach using the data collection method of written accounts. Eleven parents were… read more here.
Keywords: experience parents; lived experience; childhood eye; cancer ... See more keywords
Experience of parents of preschool children in Hawaii during the COVID-19 pandemic.
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DOI: 10.1111/phn.13076
Abstract: OBJECTIVE The COVID-19 pandemic has resulted in major disruption to economic, health, education, and social systems. Families with preschool children experienced extraordinary strain during this time. This paper describes a qualitative study examining the experience… read more here.
Keywords: parents preschool; preschool children; children hawaii; hawaii covid ... See more keywords
The experience of parents of children with rare diseases when communicating with healthcare professionals: towards an integrative theory of trust
Sign Up to like & getrecommendations! Published in 2019 at "Orphanet Journal of Rare Diseases"
DOI: 10.1186/s13023-019-1134-1
Abstract: BackgroundGiven the inherent complexity of rare paediatric diseases and the sensitive emotional context of the situations they create (due to the patients’ age and the tense uncertainty surrounding the progression of the disease), communication between… read more here.
Keywords: children rare; experience parents; communication; rare diseases ... See more keywords