Experiences of children and adolescents living with achondroplasia and their caregivers
Sign Up to like & getrecommendations! Published in 2022 at "Molecular Genetics & Genomic Medicine"
DOI: 10.1002/mgg3.1891
Abstract: Achondroplasia, caused by a pathogenic variant in the fibroblast growth factor receptor 3 gene (FGFR3), leads to significant multisystem complications across the lifespan that may affect the health‐related quality of life (HRQoL) of individuals and… read more here.
Keywords: experiences children; adolescents living; achondroplasia; living achondroplasia ... See more keywords
Post-separation Child Contact and Domestic Violence and Abuse: The Experiences of Children with a Disability
Sign Up to like & getrecommendations! Published in 2024 at "Journal of Family Violence"
DOI: 10.1007/s10896-024-00731-x
Abstract: This article addresses a gap in empirical knowledge on post-separation contact in the context of domestic violence and abuse (DVA) for children with disabilities. The intersection of disability and DVA is explored through the mother’s… read more here.
Keywords: child; experiences children; post separation; contact ... See more keywords
The Food-Related Moral Experiences of Children (Aged 6-12) With Swallowing Difficulties: A Participatory Hermeneutic Ethnography Study Protocol.
Sign Up to like & getrecommendations! Published in 2025 at "Child: care, health and development"
DOI: 10.1111/cch.70112
Abstract: BACKGROUND Food is a vital need for every individual, acting as sustenance and cultural expression. Adequate nutrition is a right for every child, influencing their self-perception and worldview. Children aged 6-12 with swallowing difficulties face… read more here.
Keywords: related moral; food; experiences children; food related ... See more keywords
The experiences of children with a cardiac transplant, their families and health care providers in the COVID‐19 pandemic
Sign Up to like & getrecommendations! Published in 2022 at "Pediatric Transplantation"
DOI: 10.1111/petr.14388
Abstract: The COVID‐19 pandemic has had deleterious impacts on pediatric patients and families, as well as the healthcare providers who have attended to their care needs. read more here.
Keywords: transplant families; experiences children; children cardiac; cardiac transplant ... See more keywords
The Grief Experiences of Children with Developmental Disabilities: A Narrative Literature Review.
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DOI: 10.1177/00302228221124520
Abstract: BACKGROUND Children with developmental disabilities have wide-ranging social, developmental, and communication challenges impacting their grieving process. This narrative review examined the literature relating to the grief experiences of children with developmental disabilities to identify implications… read more here.
Keywords: grief experiences; experiences children; review; developmental disabilities ... See more keywords
Technology-Enhanced Dialogic Reading Experiences for Children With Developmental Disabilities
Sign Up to like & getrecommendations! Published in 2021 at "Journal of Special Education Technology"
DOI: 10.1177/0162643421999004
Abstract: This manuscript describes an early childhood educator working collaboratively with a speech language pathologist and using an augmentative and alternative (AAC) device (iPad™ application) to label ... read more here.
Keywords: experiences children; technology enhanced; dialogic reading; enhanced dialogic ... See more keywords
Exploring the educational experiences of children and young people adopted from care: Using the voices of children and parents to inform practice
Sign Up to like & getrecommendations! Published in 2021 at "Adoption & Fostering"
DOI: 10.1177/03085759211043255
Abstract: National monitoring data and research suggest that British adopted children achieve poorer educational outcomes and experience higher levels of emotional, social and learning difficulties in school, compared to the general population. However, few studies have… read more here.
Keywords: experiences children; exploring educational; educational experiences; children young ... See more keywords
‘It starts when teachers are training’: The role of generalist and designated teachers in the educational experiences of children in care
Sign Up to like & getrecommendations! Published in 2022 at "Adoption & Fostering"
DOI: 10.1177/03085759221091326
Abstract: This article assesses the significance of generalist and designated schoolteachers for the educational experiences of children in care. Data were gathered from semi-structured interviews with 21 care-experienced individuals aged between 18 and 27 and three… read more here.
Keywords: experiences children; children care; educational experiences; generalist designated ... See more keywords
The moral experiences of children with osteogenesis imperfecta
Sign Up to like & getrecommendations! Published in 2022 at "Nursing Ethics"
DOI: 10.1177/09697330221105635
Abstract: Background Serious ethical problems have been anecdotally identified in the care of children with osteogenesis imperfecta (OI), which may negatively impact their moral experiences, defined as their sense of fulfillment towards personal values and beliefs.… read more here.
Keywords: art making; experiences children; moral experiences; children osteogenesis ... See more keywords
Friendship Experiences of Children With Neurodevelopmental Disabilities and Their Peers: A Meta-Synthesis
Sign Up to like & getrecommendations! Published in 2025 at "Focus on Autism and Other Developmental Disabilities"
DOI: 10.1177/10883576251349208
Abstract: Friendships are a critical component of a healthy quality of life and provide numerous benefits for all individuals but can include significant barriers for individuals with neurodevelopmental disabilities (ND). Despite calls for an increase in… read more here.
Keywords: meta synthesis; experiences children; neurodevelopmental disabilities; disabilities peers ... See more keywords
Clinical significance of psychotic-like experiences in children and adolescents.
Sign Up to like & getrecommendations! Published in 2017 at "Psychiatria polska"
DOI: 10.12740/pp/63894
Abstract: Psychotic-like experiences (PLEs) are subtle, subclinical hallucinations and delusions which are quite common in general population. In children and youth prevalence rate is probably age-dependent with higher rate in younger population. PLEs are suggested to… read more here.
Keywords: experiences children; like experiences; psychotic like; children adolescents ... See more keywords