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Published in 2019 at "International journal of pediatric otorhinolaryngology"
DOI: 10.1016/j.ijporl.2019.109658
Abstract: OBJECTIVES To date, no review has focused exclusively on the child's reported experience of living with respiratory assistance. The objective of this study was to review empirical studies exploring children's experiences and perceptions of living… read more here.
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Published in 2018 at "International Journal of Qualitative Studies on Health and Well-being"
DOI: 10.1080/17482631.2018.1522194
Abstract: ABSTRACT Purpose: The aim of this study was to investigate people’s experiences of living with dysphagia after stroke, and their experiences of dysphagia management. Methods: The study design was qualitative, and an open-ended approach to… read more here.
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Published in 2020 at "International Journal of Qualitative Studies on Health and Well-being"
DOI: 10.1080/17482631.2020.1810947
Abstract: ABSTRACT Introduction Young men may struggle in life with challenges of various concerns about their identity and who they want to be in life. Many health issues arise from social norms and wider societal determinations… read more here.
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Published in 2021 at "International Journal of Qualitative Studies on Health and Well-being"
DOI: 10.1080/17482631.2020.1857044
Abstract: ABSTRACT Purpose: To describe experiences of living with balance limitations after first-ever stroke. Materials and methods: This study has a qualitative design, comprising interviews with 19 persons with first-ever stroke, ten women and nine men.… read more here.
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Published in 2022 at "Scandinavian journal of caring sciences"
DOI: 10.1111/scs.13070
Abstract: INTRODUCTION Children affected by Paediatric Feeding Disorder (PFD) cannot consume enough nourishment by mouth. PFD is highly prevalent and can affect the child's growth and development as well as family life. AIM To illuminate Swedish… read more here.
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Published in 2020 at "BMJ Open"
DOI: 10.1136/bmjopen-2020-041428
Abstract: Objectives Pulmonary hypertension is a life-shortening disease that has a considerable impact on quality of life. Improving our understanding of how individuals are affected and cope with the disease will help to improve services and… read more here.
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Published in 2021 at "Chronic illness"
DOI: 10.1177/17423953211054032
Abstract: OBJECTIVE Postural tachycardia syndrome (PoTS) is a disorder of the autonomic nervous system which involves a range of symptoms, worsened when adopting an orthostatic (upright) position. Symptoms can include tachycardia, dizziness, fainting, nausea as well… read more here.
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Published in 2021 at "Oncology nursing forum"
DOI: 10.1188/21.onf.151-160
Abstract: PURPOSE To explore the ways in which multiple myeloma affects an individual's life in the modern treatment era. PARTICIPANTS & SETTING 15 individuals with multiple myeloma and 10 clinicians were recruited from two academic medical… read more here.
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Published in 2020 at "British journal of nursing"
DOI: 10.12968/bjon.2020.29.2.103
Abstract: BACKGROUND Multiple myeloma is a B-cell haematological malignancy characterised by uncontrolled plasma cell proliferation. Patients with the disease often undergo periods of remission followed by multiple relapses. Understanding patients' experience of living with this chronic… read more here.