The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics
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DOI: 10.1002/wps.20959
Abstract: Psychosis is the most ineffable experience of mental disorder. We provide here the first co‐written bottom‐up review of the lived experience of psychosis, whereby experts by experience primarily selected the subjective themes, that were subsequently… read more here.
Keywords: experience; lived experience; experts experience; experience psychosis ... See more keywords
“Making It Happen”: Supporting the Implementation of Positions for Experts by Experience in Mental Health Education
Sign Up to like & getrecommendations! Published in 2022 at "Issues in Mental Health Nursing"
DOI: 10.1080/01612840.2022.2095472
Abstract: Abstract Significant changes to mental health policy have positioned consumers of mental health services as active participants in all aspects of service design and delivery, leading to the development and expansion of consumer workforce roles… read more here.
Keywords: implementation positions; health; health education; experts experience ... See more keywords
Changing 'the world for the better': motivations of mental health academics for supporting expert by experience roles in mental health education.
Sign Up to like & getrecommendations! Published in 2022 at "Journal of mental health"
DOI: 10.1080/09638237.2022.2091759
Abstract: BACKGROUND Despite demonstrating positive outcomes in education, academic positions for Experts by Experience in mental health have not been widely implemented. To date positions have been driven by individual champions (allies). Their motivation for this… read more here.
Keywords: health; experts experience; mental health; motivations mental ... See more keywords
Seeing the patient as a person in interprofessional health professions education
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DOI: 10.1080/13561820.2022.2093843
Abstract: ABSTRACT Increasing prevalence of chronic disease leads to an increased need for person-centered care. To prepare future health professionals for this need, educational institutions provide interprofessional education in which they actively involve patients (hereafter called… read more here.
Keywords: experts experience; education; person; patient person ... See more keywords
Older people’s involvement in healthcare education: views and experiences of older experts by experience
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DOI: 10.1108/wwop-01-2020-0003
Abstract: “Experts by experience' (EBE) involvement in professional health-care education programmes contributes to developing students” caring skills by supporting students’ understanding of the lived experience and reality of service-users’ situations. Also, involvement in health-care education is… read more here.
Keywords: older people; views experiences; experts experience; education ... See more keywords
'It is meant to be heart rather than head'; International perspectives of teaching from lived experience in mental health nursing programs.
Sign Up to like & getrecommendations! Published in 2019 at "International journal of mental health nursing"
DOI: 10.1111/inm.12635
Abstract: Consumer participation is a clear expectation of contemporary mental health policy. Most activity has concentrated in direct service delivery, and academic roles for mental health consumers have been slow to establish. An international project was… read more here.
Keywords: health; experts experience; mental health; health nursing ... See more keywords
"I Felt Some Prejudice In The Back Of My Head": Nursing Students' Perspectives On Learning About Mental Health From 'Experts By Experience'.
Sign Up to like & getrecommendations! Published in 2019 at "Journal of psychiatric and mental health nursing"
DOI: 10.1111/jpm.12540
Abstract: INTRODUCTION Consumer participation is central to mental health policy. Negative attitudes of health professionals are barriers to realising policy goals. Evidence suggests consumers (Experts by Experience) can influence positive attitudes in nursing students. Research in… read more here.
Keywords: nursing students; students perspectives; experts experience; health ... See more keywords
Support needed by parents when a child's mental well-being is threatened-A qualitative study of views of experts-by-experience.
Sign Up to like & getrecommendations! Published in 2024 at "Scandinavian journal of caring sciences"
DOI: 10.1111/scs.13310
Abstract: BACKGROUND In situations where a child's mental well-being is threatened, the parents also need support. The available support has been perceived as insufficient by both parents and professionals. AIM To explore the views of experts-by-experience… read more here.
Keywords: child mental; support; mental well; experts experience ... See more keywords
The role and contribution of experts by experience in building research capacity in adult social care services: findings from the script study
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DOI: 10.1186/s40900-025-00779-z
Abstract: Engaging individuals with lived experience in social care research is crucial for transforming how knowledge is generated and applied in practice. This study explores the involvement and perceptions of experts by experience in the SCRiPT… read more here.
Keywords: social care; study; research; experts experience ... See more keywords
Methods and experiences of a collaborative research project carried out by academic clinical researchers and experts by experience
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DOI: 10.1192/j.eurpsy.2024.1498
Abstract: Introduction Patient or service user participation in research and development is seen as essential in health research, including in topics within psychiatry. The process and depth of research collaboration can vary and is not always… read more here.
Keywords: process; methods experiences; research project; research ... See more keywords
Withdrawing Antipsychotics for Challenging Behaviours in Adults with Intellectual Disabilities: Experiences and Views of Experts by Experience
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DOI: 10.3390/ijerph192315637
Abstract: People with intellectual disabilities (PwID) are frequently prescribed long-term antipsychotics for behaviours that challenge (BtC) despite the lack of proven effectiveness and the increased risks for side effects of these medications in this population. National… read more here.
Keywords: withdrawing antipsychotics; intellectual disabilities; challenging behaviours; behaviours adults ... See more keywords