Unraveling non-participation in genomic research: A complex interplay of barriers, facilitators, and sociocultural factors.
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DOI: 10.1002/jgc4.1707
Abstract: Although genomic research offering next-generation sequencing (NGS) has increased the diagnoses of rare/ultra-rare disorders, populations experiencing health disparities infrequently participate in these studies. The factors underlying non-participation would most reliably be ascertained from individuals who… read more here.
Keywords: barriers facilitators; facilitators sociocultural; non participation; participation ... See more keywords