Dilemmas when talking about Huntington's disease: A qualitative study of offspring and caregiver experiences in Norway
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Genetic Counseling"
DOI: 10.1002/jgc4.1610
Abstract: Research provides a compelling list of reasons why offspring should be included in honest conversations about disease when the disease affects their caregivers. Despite this, we lack in‐depth knowledge about how families affected by the… read more here.
Keywords: huntington disease; disease; dilemmas talking; families affected ... See more keywords
Exploring communication in families affected by parental chronic pain: An occupational perspective.
Sign Up to like & getrecommendations! Published in 2022 at "Scandinavian journal of occupational therapy"
DOI: 10.1080/11038128.2022.2051601
Abstract: BACKGROUND Family communication about pain is an important therapeutic target when a parent lives with chronic pain. Occupational therapy literature about communication in families affected by parental chronic pain is currently lacking. AIMS/OBJECTIVES To bring… read more here.
Keywords: affected parental; communication; parental chronic; chronic pain ... See more keywords
'Four walls and a garden': Exploring the experiences of families affected by dementia during the COVID-19 pandemic.
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DOI: 10.1177/14713012211059021
Abstract: INTRODUCTION When the first national COVID-19 lockdown came into effect in the UK in March 2020, life changed significantly. Some services and social contacts for people with dementia and their families stopped, while others, for… read more here.
Keywords: family carers; experiences families; people dementia; dementia family ... See more keywords
The Ripple Effect: A Qualitative Overview of Challenges When Growing Up in Families Affected by Huntington’s Disease
Sign Up to like & getrecommendations! Published in 2020 at "Journal of Huntington's Disease"
DOI: 10.3233/jhd-190377
Abstract: Background: The average age for the onset of Huntington’s disease (HD) is an age when many people have children and caretaking responsibilities; HD is therefore likely to impact the whole family, including children and adolescents.… read more here.
Keywords: huntington disease; growing families; young people; families affected ... See more keywords