Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework
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DOI: 10.1002/gps.4990
Abstract: Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the… read more here.
Keywords: people dementia; carers people; family carers; conceptual framework ... See more keywords
Timely diagnosis of dementia? Family carers' experiences in 5 European countries
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DOI: 10.1002/gps.4997
Abstract: Timely diagnosis of dementia is recommended in national strategies. To what extent is it occurring across Europe, what factors are associated with it, and what is the impact on carers emotions of quality of diagnostic… read more here.
Keywords: timely diagnosis; diagnosis dementia; experiences european; family carers ... See more keywords
How do Admiral Nurses and care home staff help people living with dementia and their family carers prepare for end‐of‐life?
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DOI: 10.1002/gps.5256
Abstract: To explore current practice and the role of UK care homes and Admiral Nurses in helping people living with dementia and their family carers prepare for end‐of‐life. read more here.
Keywords: carers prepare; living dementia; admiral nurses; family carers ... See more keywords
Bridging the gap in implementing non‐pharmacological interventions in dementia during the Covid‐19 pandemic: What more can we do to implementing individual Cognitive Stimulation Therapy (iCST) in dementia?
Sign Up to like & getrecommendations! Published in 2021 at "International Journal of Geriatric Psychiatry"
DOI: 10.1002/gps.5651
Abstract: Dear editor The Covid‐19 pandemic has restricted people living with dementia from participating in cognitive and psychosocial activities and accessing invaluable sources, and support. The prolonged lockdown may cause further decline in people living with… read more here.
Keywords: family carers; living dementia; icst; people living ... See more keywords
Measuring the quality of life of family carers of people with dementia: development and validation of C-DEMQOL
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DOI: 10.1007/s11136-019-02186-w
Abstract: PurposeWe aimed to address gaps identified in the evidence base and instruments available to measure the quality of life (QOL) of family carers of people with dementia, and develop a new brief, reliable, condition-specific instrument.MethodsWe… read more here.
Keywords: carers people; family; family carers; quality life ... See more keywords
Comparing symptom ratings by staff and family carers in residents dying in long-term care facilities in three European countries, results from a PACE-survey.
Sign Up to like & getrecommendations! Published in 2020 at "Journal of pain and symptom management"
DOI: 10.1016/j.jpainsymman.2020.03.002
Abstract: CONTEXT Symptom management is essential in the end of life care of long-term care facility residents. OBJECTIVES To study discrepancies and possible associated factors in staff and family carers' symptom assessment scores for residents in… read more here.
Keywords: staff; long term; family; family carers ... See more keywords
An analysis of carer burden among family carers of people with and without dementia in Ireland
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DOI: 10.1017/s1041610220000769
Abstract: ABSTRACT Objective: Despite the policy relevance of carer burden, limited research focuses on family carers’ experience of carer burden among different disease groups. This study aimed to examine differences in carer burden among family carers… read more here.
Keywords: burden; carer burden; carers people; family carers ... See more keywords
409 - Trends in Involvement, Perceived Role, Role Overload and Self-efficacy of Family Carers of People with Dementia in Care Homes
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DOI: 10.1017/s1041610220002628
Abstract: Introduction The quality of long-term care provided to people with dementia (PwD) in care homes can be improved by implementing person-centered care. Family carers of PwD living in care homes are an important part of… read more here.
Keywords: care homes; family; role; family carers ... See more keywords
Dementia trials, outcomes, and outcome measurement instruments for people living with dementia and family carers – considerations on how to improve the “gold standard”
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DOI: 10.1017/s1041610220003749
Abstract: Measuring outcomes in trial-based research are regarded as the “gold standard” methodology to inform policy and practice (Rockwood and Gauthier, 2006). While trial methodology and intervention research in the field of dementia is not without… read more here.
Keywords: methodology; family carers; gold standard; dementia ... See more keywords
"Because if I don't hold his hand then I might as well not be there": Experiences of Dutch and UK care home visiting during the COVID-19 pandemic.
Sign Up to like & getrecommendations! Published in 2022 at "International psychogeriatrics"
DOI: 10.1017/s1041610221002799
Abstract: OBJECTIVES To explore and compare the experiences of care home visits during the pandemic in the UK and the Netherlands. DESIGN Qualitative semi-structured interview studies. SETTING AND PARTICIPANTS Family carers of relatives residing in care… read more here.
Keywords: care home; family carers; home visits; care ... See more keywords
Self-Compassion, Health Outcomes, and Family Carers of Older Adults: An Integrative Review
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DOI: 10.1080/07317115.2018.1560383
Abstract: ABSTRACT Objectives This review sought to synthesize published evidence about the role of self-compassion on health outcomes for family carers of older adults, to describe the current state of knowledge. Method Using an integrative review… read more here.
Keywords: health outcomes; outcomes family; family; self compassion ... See more keywords