Endocrinal description of two Chinese Kennedy’s disease pedigrees
Sign Up to like & getrecommendations! Published in 2018 at "Journal of Clinical Neuroscience"
DOI: 10.1016/j.jocn.2017.10.037
Abstract: Kennedy's disease (KD), also known as X-linked spinal and bulbar muscular atrophy (SBMA), is caused by the expansion of cytosine-adenine-guanine (CAG) repeats in the first exon of the androgen receptor (AR) gene. KD is a… read more here.
Keywords: kennedy disease; two chinese; disease; family survey ... See more keywords
Identifying Optimal Factor Scores on the Bereaved Family Survey: Implications for Practice and Policy.
Sign Up to like & getrecommendations! Published in 2019 at "Journal of pain and symptom management"
DOI: 10.1016/j.jpainsymman.2019.04.002
Abstract: CONTEXT The Bereaved Family Survey (BFS) is used to evaluate the quality of end-of-life (EOL) care in Veterans Affairs inpatient settings. The BFS consists of a global Performance Measure (BFS-PM) and three factors that relate… read more here.
Keywords: bereaved family; factor scores; family survey; bfs ... See more keywords
Serious illness care quality during COVID-19: Identifying improvement opportunities in narrative reports from a National Bereaved Family Survey
Sign Up to like & getrecommendations! Published in 2023 at "Palliative Medicine"
DOI: 10.1177/02692163231175693
Abstract: Background: COVID-19 significantly impacted care delivery to seriously ill patients, especially around including family and caregivers in patient care. Aim: Based on routinely collected bereaved family reports, actionable practices were identified to maintain and improve… read more here.
Keywords: family; bereaved family; actionable practices; care ... See more keywords