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Published in 2018 at "Journal of Palliative Medicine"
DOI: 10.1089/jpm.2018.0054
Abstract: Abstract Generalized severe junctional epidermolysis bullosa is a rare mechanobullous skin disorder that is uniformly fatal. We present the case of an infant who received palliative pain management and ultimately proportionate palliative sedation. However, because…
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Keywords:
junctional epidermolysis;
generalized severe;
severe junctional;
sedation ... See more keywords