Engaging rural communities in genetic research: challenges and opportunities
Sign Up to like & getrecommendations! Published in 2017 at "Journal of Community Genetics"
DOI: 10.1007/s12687-017-0304-x
Abstract: Statistical analyses of health and disease in rural communities is frequently limited by low sample counts. Still, some studies indicate increased risk for some diseases even after adjustment for known risk factors. It has been… read more here.
Keywords: research; communities genetic; community; engaging rural ... See more keywords
Perspectives of psychiatric investigators and IRB chairs regarding benefits of psychiatric genetics research.
Sign Up to like & getrecommendations! Published in 2018 at "Journal of psychiatric research"
DOI: 10.1016/j.jpsychires.2018.08.027
Abstract: There is hope that psychiatric genetics inquiry will provide important insights into the origins and treatment of mental illness given the burden of these conditions. We sought to examine perspectives of psychiatric genetic investigators regarding… read more here.
Keywords: research; irb chairs; genetics; psychiatric genetic ... See more keywords
Views of the importance of psychiatric genetic research by potential volunteers from stakeholder groups.
Sign Up to like & getrecommendations! Published in 2018 at "Journal of psychiatric research"
DOI: 10.1016/j.jpsychires.2018.09.011
Abstract: Few studies have explored potential volunteers' attitudes toward genetic research. To address this gap in the literature, we developed an empirical project to document views held by individuals who may wish to enroll in genetic… read more here.
Keywords: potential volunteers; research; views importance; research potential ... See more keywords
Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network
Sign Up to like & getrecommendations! Published in 2020 at "Frontiers in Genetics"
DOI: 10.3389/fgene.2020.585820
Abstract: In 2017 the Swiss federal government established the Swiss Personalized Health Network (SPHN), a nationally coordinated data infrastructure for genetic research. The SPHN advisory group on Ethical, Legal, and Social Implications (ELSI) was tasked with… read more here.
Keywords: research; swiss personalized; reporting genetic; genetic research ... See more keywords
Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective
Sign Up to like & getrecommendations! Published in 2022 at "Frontiers in Genetics"
DOI: 10.3389/fgene.2022.1014120
Abstract: This article draws on reflections about humanness, friendliness and partiality, in the writings of Afro-communitarians to develop principles for thinking critically about why benefit sharing, what may count as benefits within the context of human… read more here.
Keywords: rethinking benefit; genetic research; human genetic; benefit sharing ... See more keywords
Recent Developments in Autism Genetic Research: A Scientometric Review from 2018 to 2022
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DOI: 10.3390/genes13091646
Abstract: Genetic research in Autism Spectrum Disorder (ASD) has progressed tremendously in recent decades. Dozens of genetic loci and hundreds of alterations in the genetic sequence, expression, epigenetic transformation, and interactions with other physiological and environmental… read more here.
Keywords: 2018 2022; genetic research; developments autism; recent developments ... See more keywords
Human Genetic Research in Wallacea and Sahul: Recent Findings and Future Prospects
Sign Up to like & getrecommendations! Published in 2022 at "Genes"
DOI: 10.3390/genes13122373
Abstract: Genomic sequence data from worldwide human populations have provided a range of novel insights into our shared ancestry and the historical migrations that have shaped our global genetic diversity. However, a comprehensive understanding of these… read more here.
Keywords: human genetic; wallacea sahul; research wallacea; genetic research ... See more keywords