Marfan Syndrome and Quality of Life in the GenTAC Registry.
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DOI: 10.1016/j.jacc.2017.04.026
Abstract: BACKGROUND Previous small studies suggested reduced quality of life (QOL) for people with Marfan syndrome (MFS) compared with those without MFS. The national registry of GenTAC (Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions) is… read more here.
Keywords: marfan syndrome; gentac registry; health; quality life ... See more keywords