The global PNH patient registry: real-world data on PNH symptom burden and quality of life
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DOI: 10.1182/blood-2025-2697
Abstract: Introduction: Current knowledge of the lived experience of individuals with Paroxysmal Nocturnal Hemoglobinuria (PNH) is informed by data collected during clinical trials. This information is therefore short-term and limited to individuals who choose to participate… read more here.
Keywords: global pnh; patient registry; registry; pnh ... See more keywords