Evolution of congenital haemophilia care in Taiwan.
Sign Up to like & getrecommendations! Published in 2021 at "Journal of the Formosan Medical Association = Taiwan yi zhi"
DOI: 10.1016/j.jfma.2021.07.017
Abstract: Haemophilia care in Taiwan has come a long way over the past 35 years, from the absence of specialised haemophilia treatment centres before 1984 to the establishment of treatment centers in the majority of medical… read more here.
Keywords: care taiwan; evolution congenital; congenital haemophilia; haemophilia care ... See more keywords
Choosing outcome assessment tools in haemophilia care and research: a multidisciplinary perspective
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DOI: 10.1111/hae.13088
Abstract: The implementation of early long‐term, regular clotting factor concentrate (CFC) replacement therapy (‘prophylaxis’) has made it possible to offer boys with haemophilia a near normal life. Many different regimens have reported favourable results, but the… read more here.
Keywords: outcome assessment; tools haemophilia; assessment tools; choosing outcome ... See more keywords
Haemophilia care in Europe ‐ A survey of 37 countries
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DOI: 10.1111/hae.13263
Abstract: The European Haemophilia Consortium (EHC) is an international non‐profit organization representing 45 national patients' organizations in Europe. Every 3 years, the EHC circulates a survey to its national member organizations to assess the state of… read more here.
Keywords: survey; care europe; europe survey; haemophilia care ... See more keywords
Haemophilia care in China: Achievements in the past decade
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DOI: 10.1111/hae.14101
Abstract: There is a large population of people with haemophilia in China. However, the development of haemophilia care in China lagged far behind developed countries and was unbalanced across different regions. With the establishment of the… read more here.
Keywords: care china; china; decade; haemophilia care ... See more keywords