Articles with "heritable retinoblastoma" as a keyword



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Danish heritable retinoblastoma survivors' perspectives on reproductive choices: “It's important for me, not to pass on this condition”

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Published in 2022 at "Journal of Genetic Counseling"

DOI: 10.1002/jgc4.1618

Abstract: Despite reporting an overall normal life, survivors of heritable retinoblastoma face numerous physical and psychosocial issues. In particular, reproductive decision‐making is often complex and difficult. This study aims to examine survivors' reflections on passing on… read more here.

Keywords: danish heritable; retinoblastoma; condition; retinoblastoma survivors ... See more keywords
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Living with heritable retinoblastoma and the perceived role of regular follow-up at a retinoblastoma survivorship clinic: ‘That is exactly what I have been missing’

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Published in 2021 at "BMJ Open Ophthalmology"

DOI: 10.1136/bmjophth-2021-000760

Abstract: Objective To explore living with heritable retinoblastoma, specifically survivors’ perceived role of regular follow-up at a retinoblastoma survivorship clinic. Methods and analysis Adult survivors of heritable retinoblastoma were recruited from the Retinoblastoma Survivorship Clinic, Aarhus… read more here.

Keywords: heritable retinoblastoma; retinoblastoma; survivorship; role ... See more keywords