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Published in 2022 at "Journal of Genetic Counseling"
DOI: 10.1002/jgc4.1618
Abstract: Despite reporting an overall normal life, survivors of heritable retinoblastoma face numerous physical and psychosocial issues. In particular, reproductive decision‐making is often complex and difficult. This study aims to examine survivors' reflections on passing on…
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Keywords:
danish heritable;
retinoblastoma;
condition;
retinoblastoma survivors ... See more keywords
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Published in 2021 at "BMJ Open Ophthalmology"
DOI: 10.1136/bmjophth-2021-000760
Abstract: Objective To explore living with heritable retinoblastoma, specifically survivors’ perceived role of regular follow-up at a retinoblastoma survivorship clinic. Methods and analysis Adult survivors of heritable retinoblastoma were recruited from the Retinoblastoma Survivorship Clinic, Aarhus…
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Keywords:
heritable retinoblastoma;
retinoblastoma;
survivorship;
role ... See more keywords