Hope in the uncertainties and certainty for parents of children with rare neurological disorders. Part I (of 3): Uncertainty
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DOI: 10.1111/jpc.16165
Abstract: This is the first of three articles exploring the aspects of clinical care for children with rare neurological disorders including uncertainties old and new. The disruptive technologies of genomic sequencing and advanced therapeutics such as… read more here.
Keywords: children rare; parents children; neurological disorders; rare neurological ... See more keywords
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope
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DOI: 10.1111/jpc.16187
Abstract: This is the third article of a three‐part series and addresses how clinicians provide hopefulness meaningfully to families coping with life‐limiting and quality of life impairing neurological conditions. The first two articles addressed the enormous… read more here.
Keywords: hope; parents children; certainty parents; uncertainties certainty ... See more keywords
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Paediatrics and Child Health"
DOI: 10.1111/jpc.16202
Abstract: This is the second of a three‐part series that explores different aspects of uncertainty, certainty and hope in the context of providing clinical care for children with rare and life‐limiting neurological disorders. When caring for… read more here.
Keywords: certainty hope; hope; children rare; neurological disorders ... See more keywords