Enhancing human aspects of care with young people with muscular dystrophy: Results from a participatory qualitative study with clinicians
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DOI: 10.1111/cch.12526
Abstract: BACKGROUND Most research into clinical care of Duchenne or Becker dystrophinopathies (MD) has focused on slowing progressive muscular weakness and extending lifespan. Scarce attention has been paid to the "human" aspects of care such as… read more here.
Keywords: human aspects; study; aspects care; care ... See more keywords