Humanistic burden of problem joints for children and adults with haemophilia
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DOI: 10.1111/hae.14731
Abstract: The “problem joint” (PJ) concept was developed to address patient‐centric needs for a more holistic assessment of joint morbidity for people with haemophilia (PwH). read more here.
Keywords: problem; burden problem; problem joints; humanistic burden ... See more keywords
The humanistic burden of vitiligo: a systematic literature review of quality‐of‐life outcomes
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DOI: 10.1111/jdv.18129
Abstract: Despite historical mischaracterization as a cosmetic condition, patients with the autoimmune disorder vitiligo experience substantial quality‐of‐life (QoL) burden. This systematic literature review of peer‐reviewed observational and interventional studies describes comprehensive evidence for humanistic burden in… read more here.
Keywords: humanistic burden; quality; dermatology; life ... See more keywords
Economic and Humanistic Burden in Paediatric Patients with Atopic Dermatitis
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DOI: 10.2340/actadv.v103.4842
Abstract: Data concerning the economic and humanistic burden in patients with paediatric atopic dermatitis (AD) and their families are scarce. This retrospective study investigated these burdens in paediatric patients with AD using maintenance treatment with topical… read more here.
Keywords: paediatric patients; humanistic burden; atopic dermatitis; burden ... See more keywords