Hypermobile Ehlers‐Danlos Syndrome: A Prodromal Subtype of Functional Movement Disorders?
Sign Up to like & getrecommendations! Published in 2022 at "Movement Disorders Clinical Practice"
DOI: 10.1002/mdc3.13545
Abstract: The phenotypic diversity of functional movement disorders (FMD) is considered a reflection of its many etiological subtypes. Ehlers‐Danlos syndrome (EDS), a joint hypermobility syndrome, also has variable phenotypes, which may include functional symptoms. read more here.
Keywords: movement disorders; movement; danlos syndrome; hypermobile ehlers ... See more keywords
Response to “Quantitative measures of tissue mechanics to detect hypermobile Ehlers Danlos syndrome and hypermobility syndrome disorders: a systematic review”
Sign Up to like & getrecommendations! Published in 2020 at "Clinical Rheumatology"
DOI: 10.1007/s10067-020-05192-3
Abstract: Dear Sir Thank you to RodneyGrahame and colleagues for their letter [1], published in this edition, concerning our systematic review of tissue mechanics in hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility syndrome disorders (HSD) [2]. It… read more here.
Keywords: systematic review; ehlers danlos; hypermobile ehlers; mechanics ... See more keywords
An acquired or heritable connective tissue disorder? A review of hypermobile Ehlers Danlos Syndrome.
Sign Up to like & getrecommendations! Published in 2019 at "European journal of medical genetics"
DOI: 10.1016/j.ejmg.2019.103672
Abstract: Hypermobile Ehlers Danlos Syndrome (hEDS) is a multifaceted disorder that is difficult to diagnose and manage primarily due to the unknown causes. Research on hEDS continues to evolve but tangible progress will be realized when… read more here.
Keywords: connective tissue; danlos syndrome; ehlers danlos; hypermobile ehlers ... See more keywords
Predictors of pain and mobility disability in the hypermobile Ehlers-Danlos syndrome
Sign Up to like & getrecommendations! Published in 2019 at "Disability and Rehabilitation"
DOI: 10.1080/09638288.2019.1608595
Abstract: Abstract Aim: Among the Ehlers-Danlos syndromes, the hypermobile subtype (hEDS) is the most common. The variety, accumulation and duration of the painful symptoms make hEDS a chronic and highly disabling condition. Identifying drivers of pain… read more here.
Keywords: mobility disability; disability; danlos syndrome; ehlers danlos ... See more keywords
Patients' strategies for numeric pain assessment: a qualitative interview study of individuals with hypermobile Ehlers-Danlos Syndrome.
Sign Up to like & getrecommendations! Published in 2023 at "Disability and rehabilitation"
DOI: 10.1080/09638288.2023.2200039
Abstract: PURPOSE Chronic pain is a common feature of hypermobile Ehlers-Danlos Syndrome (hEDS), yet how patients assess and communicate their pain remains poorly understood. The objective of the present study was to explore the use of… read more here.
Keywords: pain assessment; danlos syndrome; numeric pain; hypermobile ehlers ... See more keywords
Physical therapy interventions in generalized hypermobility spectrum disorder and hypermobile Ehlers-Danlos syndrome: a scoping review.
Sign Up to like & getrecommendations! Published in 2023 at "Disability and rehabilitation"
DOI: 10.1080/09638288.2023.2216028
Abstract: PURPOSE Physical therapy (PT) plays a central role in treating individuals with Generalized Hypermobility Spectrum Disorder (G-HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS). However, there is limited research describing these individuals' PT management. This review aims… read more here.
Keywords: generalized hypermobility; therapy; spectrum disorder; hypermobile ehlers ... See more keywords
Severity classes in adults with hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders: a pilot study of 105 Italian patients.
Sign Up to like & getrecommendations! Published in 2019 at "Rheumatology"
DOI: 10.1093/rheumatology/kez029
Abstract: OBJECTIVES This study is aimed at identifying discrete severity classes among adults with hypermobile Ehlers-Danlos syndrome (hEDS)/hypermobility spectrum disorders (HSD). METHODS Subjects were selected according to the old and new nomenclatures and all completed a… read more here.
Keywords: severity; ehlers danlos; hypermobile ehlers; severity classes ... See more keywords
Clinical trajectory of hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders in older adults.
Sign Up to like & getrecommendations! Published in 2023 at "Journal of the American Association of Nurse Practitioners"
DOI: 10.1097/jxx.0000000000000900
Abstract: BACKGROUND Research on hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder (hEDS/HSD) has described its natural history and clinical course in children, adolescents, and young to middle-aged adults. However, more research is needed on the clinical… read more here.
Keywords: heds hsd; older adults; danlos syndrome; hypermobile ehlers ... See more keywords
Skin biopsy reveals generalized small fibre neuropathy in hypermobile Ehlers–Danlos syndromes
Sign Up to like & getrecommendations! Published in 2022 at "European Journal of Neurology"
DOI: 10.1111/ene.15649
Abstract: Ehlers–Danlos syndromes are hereditary disorders of connective tissue that are characterized by joint hypermobility, skin hyperextensibility and tissue fragility. The most common subtype is the hypermobile type. In addition to symptoms of small fibre neuropathy… read more here.
Keywords: fibre neuropathy; small fibre; danlos syndromes; hypermobile ehlers ... See more keywords
Cardiovascular manifestations of hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders.
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DOI: 10.1177/1358863x211067566
Abstract: Introduction: Mitral valve prolapse and aortic root dilatation are reported in association with hypermobile Ehlers-Danlos syndrome (hEDS), but the full phenotypic spectrum of cardiovascular complications in this condition has not been studied in the aftermath… read more here.
Keywords: medicine; heds hsd; spectrum; hypermobile ehlers ... See more keywords
Hypermobile Ehlers–Danlos syndrome and pregnancy
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DOI: 10.1177/1753495x18754577
Abstract: Ehlers–Danlos syndromes are a clinically and genetically heterogeneous group of rare inherited connective tissue disorders. Hypermobile Ehlers–Danlos syndrome is one of the common types and not infrequently encountered in pregnancy. While, in the majority of… read more here.
Keywords: medicine; syndrome pregnancy; danlos syndrome; ehlers danlos ... See more keywords