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Published in 2018 at "Molecular Genetics & Genomic Medicine"
DOI: 10.1002/mgg3.472
Abstract: Genetic providers face the challenge of having adequate time to conduct a comprehensive evaluation. Hypermobile Ehlers–Danlos (hEDS) syndrome has a complex array of symptoms. An initial visit can involve approximately 60–80 min and an additional…
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Keywords:
quality improvement;
model;
ehlers danlos;
improvement clinic ... See more keywords