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Quality improvement of clinic flow for complex genetic conditions: Using Ehlers–Danlos syndrome as a model

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Published in 2018 at "Molecular Genetics & Genomic Medicine"

DOI: 10.1002/mgg3.472

Abstract: Genetic providers face the challenge of having adequate time to conduct a comprehensive evaluation. Hypermobile Ehlers–Danlos (hEDS) syndrome has a complex array of symptoms. An initial visit can involve approximately 60–80 min and an additional… read more here.

Keywords: quality improvement; model; ehlers danlos; improvement clinic ... See more keywords