Incorporating patient and caregiver feedback into lung transplant referral guidelines for individuals with cystic fibrosis—Preliminary findings from a novel paradigm
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DOI: 10.1111/ctr.14038
Abstract: Lung transplantation is a common therapeutic option for individuals with cystic fibrosis (CF) and advanced lung disease, yet many individuals with CF are not appropriately referred for evaluation. The present study sought to enhance CF… read more here.
Keywords: cystic fibrosis; individuals cystic; referral guidelines; transplant referral ... See more keywords
CFTR Modulators to the Rescue of Individuals with Cystic Fibrosis and Advanced Lung Disease
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DOI: 10.1164/rccm.202103-0674ed
Abstract: medicine in ARDS. These challenges are currently being tackled by others (https://clinicaltrials.gov/ct2/show/NCT04009330), and it is possible that we will have rapid diagnostics in the not-so-distant future. The best lesson, one that we can act on… read more here.
Keywords: medicine; cystic fibrosis; modulators rescue; rescue individuals ... See more keywords
Lived experiences of individuals with cystic fibrosis on CFTR-modulators
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DOI: 10.1186/s12890-022-01825-2
Abstract: Background CFTR-modulators are a category of drugs that facilitate trafficking and opening of the abnormal CFTR protein in individuals with cystic fibrosis (CF) who have certain genetic mutations. Clinical trial data show that individuals taking… read more here.
Keywords: cystic fibrosis; individuals cystic; cftr; lived experiences ... See more keywords