Caregivers of Individuals with Rubinstein-Taybi syndrome: Perspectives, experiences, and relationships with medical professionals.
Sign Up to like & getrecommendations! Published in 2021 at "Journal of genetic counseling"
DOI: 10.1002/jgc4.1464
Abstract: Rubinstein-Taybi syndrome (RTS) is a rare genetic disorder. Family-centered care (FCC) is a healthcare delivery approach that aims to create an equal partnership between caregivers and providers. FCC has been shown to improve parental wellbeing,… read more here.
Keywords: individuals rts; caregivers individuals; rubinstein taybi; care ... See more keywords