A validation study of the ICECAP-O in informal carers of people with dementia from eight European Countries
Sign Up to like & getrecommendations! Published in 2019 at "Quality of Life Research"
DOI: 10.1007/s11136-019-02317-3
Abstract: Purpose The pressure on healthcare budgets remains high, partially due to the ageing population. Economic evaluation can be a helpful tool to inform resource allocation in publicly financed systems. Such evaluations frequently use health-related outcome… read more here.
Keywords: people dementia; eight european; carers people; informal carers ... See more keywords
Cost–Utility Analyses of Interventions for Informal Carers: A Systematic and Critical Review
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DOI: 10.1007/s40273-019-00874-6
Abstract: Background Demographic and epidemiological changes place an increasing reliance on informal carers. Some support programmes exist, but funding is often limited. There is a need for economic evaluation of interventions for carers to assist policymakers… read more here.
Keywords: utility analyses; analyses interventions; informal carers; cost utility ... See more keywords
The Mental Well-Being of Informal Carers of Adults on the Autism Spectrum: a Systematic Review
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DOI: 10.1007/s40489-019-00177-8
Abstract: Carers of autistic adults may experience increased day-to-day stress relating to their caring role. This review aims to (1) summarise the current literature on factors that affect mental well-being in carers of autistic adults and… read more here.
Keywords: carers adults; well informal; review; adults autism ... See more keywords
A systematic review of the provision and efficacy of patient and carer information and support (PCIS) interventions for patients with dementia and their informal carers
Sign Up to like & getrecommendations! Published in 2019 at "Aging Clinical and Experimental Research"
DOI: 10.1007/s40520-019-01428-8
Abstract: The NHS dementia strategy identifies patient and carer information and support (PCIS) as a core component of gold-standard dementia care. This is the first systematic review of PCIS, performed to analyse the literature and evidence… read more here.
Keywords: pcis; dementia informal; information; informal carers ... See more keywords
Social exclusion in adult informal carers: A systematic narrative review of the experiences of informal carers of people with dementia and mental illness.
Sign Up to like & getrecommendations! Published in 2018 at "Maturitas"
DOI: 10.1016/j.maturitas.2018.03.011
Abstract: Social exclusion has a negative impact on quality of life. People living with dementia or mental health disorders as well as informal carers have been separately described as socially excluded. The objective of this systematic… read more here.
Keywords: social exclusion; adult; carers people; exclusion ... See more keywords
310 - Enhancing communication between nursing staff and people with dementia, their informal carers and other involved professionals: development of tools
Sign Up to like & getrecommendations! Published in 2020 at "International Psychogeriatrics"
DOI: 10.1017/s1041610220002100
Abstract: Background Nursing staff play an important role in the care of people with dementia (pwd), both at home and in residential care. Communication is essential in providing person centered care to people with dementia. However,… read more here.
Keywords: nursing staff; people dementia; staff; development tools ... See more keywords
Understanding informal carers’ experiences of caring for older people with a hip fracture: a systematic review of qualitative studies
Sign Up to like & getrecommendations! Published in 2018 at "Disability and Rehabilitation"
DOI: 10.1080/09638288.2016.1262467
Abstract: Abstract Purpose: This systematic review aimed to reconceptualize experiences from a variety of papers to provide direction for research, policy and practice. Method: Meta-ethnography was used to inform the review, and 21 studies were included.… read more here.
Keywords: systematic review; relatives carers; informal carers; review ... See more keywords
Informal care management after traumatic brain injury: perspectives on informal carer workload and capacity
Sign Up to like & getrecommendations! Published in 2018 at "Disability and Rehabilitation"
DOI: 10.1080/09638288.2018.1508511
Abstract: Abstract Purpose: Much of the support required to live in the community post-traumatic brain injury (TBI) is provided by informal carers. Understanding the nature of caregiving work is important to better support informal carers. This… read more here.
Keywords: work; workload; capacity; informal carers ... See more keywords
Informal carers in Sweden – striving for partnership
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DOI: 10.1080/17482631.2021.1994804
Abstract: ABSTRACT Purpose Informal carers have an important role in society through their care and support of their long-term ill relatives. Providing informal care is challenging and can lead to caregiver burden; moreover, many support needs… read more here.
Keywords: striving partnership; informal carers; carers sweden; sweden striving ... See more keywords
Measuring Quality of Life in Chronic Limb-threatening Ischemia Patients and Informal Carers: A Scoping Review
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DOI: 10.1097/sla.0000000000005477
Abstract: Objective: To review quality of life (QOL) instruments for chronic limb-threatening ischemia (CLTI) patients and informal carers, and their use in QOL and cost-utility analysis (CUA) studies. Background: CLTI is a global health problem with… read more here.
Keywords: informal carers; patients informal; chronic limb; limb threatening ... See more keywords
Dementia cafés: recommendations from interviews with informal carers
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DOI: 10.1108/wwop-07-2017-0018
Abstract: Purpose Dementia cafes (also known as Alzheimer’s or memory cafes) have been running in the UK since 2000. The purpose of this paper is to report on the recommendations from recent research that interviewed family… read more here.
Keywords: interviews informal; caf recommendations; informal carers; dementia caf ... See more keywords