A validation study of the ICECAP-O in informal carers of people with dementia from eight European Countries
Sign Up to like & getrecommendations! Published in 2019 at "Quality of Life Research"
DOI: 10.1007/s11136-019-02317-3
Abstract: Purpose The pressure on healthcare budgets remains high, partially due to the ageing population. Economic evaluation can be a helpful tool to inform resource allocation in publicly financed systems. Such evaluations frequently use health-related outcome… read more here.
Keywords: people dementia; eight european; carers people; informal carers ... See more keywords
Cost–Utility Analyses of Interventions for Informal Carers: A Systematic and Critical Review
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DOI: 10.1007/s40273-019-00874-6
Abstract: Background Demographic and epidemiological changes place an increasing reliance on informal carers. Some support programmes exist, but funding is often limited. There is a need for economic evaluation of interventions for carers to assist policymakers… read more here.
Keywords: utility analyses; analyses interventions; informal carers; cost utility ... See more keywords
The Mental Well-Being of Informal Carers of Adults on the Autism Spectrum: a Systematic Review
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DOI: 10.1007/s40489-019-00177-8
Abstract: Carers of autistic adults may experience increased day-to-day stress relating to their caring role. This review aims to (1) summarise the current literature on factors that affect mental well-being in carers of autistic adults and… read more here.
Keywords: carers adults; well informal; review; adults autism ... See more keywords
A systematic review of the provision and efficacy of patient and carer information and support (PCIS) interventions for patients with dementia and their informal carers
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DOI: 10.1007/s40520-019-01428-8
Abstract: The NHS dementia strategy identifies patient and carer information and support (PCIS) as a core component of gold-standard dementia care. This is the first systematic review of PCIS, performed to analyse the literature and evidence… read more here.
Keywords: pcis; dementia informal; information; informal carers ... See more keywords
Social exclusion in adult informal carers: A systematic narrative review of the experiences of informal carers of people with dementia and mental illness.
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DOI: 10.1016/j.maturitas.2018.03.011
Abstract: Social exclusion has a negative impact on quality of life. People living with dementia or mental health disorders as well as informal carers have been separately described as socially excluded. The objective of this systematic… read more here.
Keywords: social exclusion; adult; carers people; exclusion ... See more keywords
Bridging the gaps: narratives of informal carers of older migrants with dementia using professional care
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DOI: 10.1017/s0144686x25000017
Abstract: With society’s growing diversity, it is increasingly crucial to comprehend the care needs of older migrants with dementia and their informal carers. This study explores the experiences of informal carers of older migrants with dementia… read more here.
Keywords: professional care; migrants dementia; care; informal carers ... See more keywords
OD46 Inequalities In Dementia: Identifying Instruments For Measurement
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DOI: 10.1017/s0266462324001739
Abstract: Introduction Despite dementia being the seventh leading cause of death globally, there is relatively little discussion of the presence and impact of inequalities in this context. We explore ways to quantify the magnitude and variation… read more here.
Keywords: diagnosis rates; diagnosis; rural areas; timely diagnosis ... See more keywords
310 - Enhancing communication between nursing staff and people with dementia, their informal carers and other involved professionals: development of tools
Sign Up to like & getrecommendations! Published in 2020 at "International Psychogeriatrics"
DOI: 10.1017/s1041610220002100
Abstract: Background Nursing staff play an important role in the care of people with dementia (pwd), both at home and in residential care. Communication is essential in providing person centered care to people with dementia. However,… read more here.
Keywords: nursing staff; people dementia; staff; development tools ... See more keywords
Family and informal carers' views and experiences of antipsychotic reduction and discontinuation within a medication reduction research trial.
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DOI: 10.1080/09638237.2025.2585195
Abstract: BACKGROUND Family/informal carers play important roles in supporting or monitoring medicine-taking for people with recurrent psychosis, but their views on antipsychotic medication are under-researched. AIM To explore family/informal carers' views and experiences of antipsychotic reduction… read more here.
Keywords: family informal; trial; discontinuation; informal carers ... See more keywords
Understanding informal carers’ experiences of caring for older people with a hip fracture: a systematic review of qualitative studies
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DOI: 10.1080/09638288.2016.1262467
Abstract: Abstract Purpose: This systematic review aimed to reconceptualize experiences from a variety of papers to provide direction for research, policy and practice. Method: Meta-ethnography was used to inform the review, and 21 studies were included.… read more here.
Keywords: systematic review; relatives carers; informal carers; review ... See more keywords
Informal care management after traumatic brain injury: perspectives on informal carer workload and capacity
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DOI: 10.1080/09638288.2018.1508511
Abstract: Abstract Purpose: Much of the support required to live in the community post-traumatic brain injury (TBI) is provided by informal carers. Understanding the nature of caregiving work is important to better support informal carers. This… read more here.
Keywords: work; workload; capacity; informal carers ... See more keywords