Living with an invisible illness: a qualitative study exploring the lived experiences of female children with congenital adrenal hyperplasia
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DOI: 10.1007/s11136-019-02350-2
Abstract: Purpose Many chronic illnesses are self-evident. However, disorders like congenital adrenal hyperplasia (CAH) are invisible to the naked eye and unnoticeable to others. Therefore, invisible illness is often a shared, misconstrued experience for children with… read more here.
Keywords: children cah; lived experiences; invisible illness; female children ... See more keywords
“It comes in waves”: A relational dialectics approach to exploring living grief in U.S. emerging adults with invisible illness
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DOI: 10.1177/02654075241257189
Abstract: Experiencing the onset of (invisible) chronic illness in emerging adulthood prompts a unique grieving process that is disenfranchised due to social discourses that sanction grief to death-related loss. Guided by relational dialectics theory, the present… read more here.
Keywords: chronic illness; illness; invisible illness; grief ... See more keywords